Abstract

The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)

Highlights

  • Quality improvement in cancer care and research is a major goal shared by healthcare professionals, researchers, patients and the public

  • With a response rate of 78%, the results first show that the level of patient involvement is high in OECI cancer centres

  • 81% of the centres (n=48) state that they involve patients in the design of services and in the improvement of research

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Summary

Introduction

Quality improvement in cancer care and research is a major goal shared by healthcare professionals, researchers, patients and the public. The Organization of European Cancer Institutes (OECI), which promotes the concepts of comprehensiveness and multidisciplinarity for cancer centres, has produced a framework with the European Cancer Patients Coalition. This framework engages institutions to improve quality through the involvement of patients and the collaborations with local and national patient organisations. In order to examine how European cancer centers build their own models of patient involvement, a survey was designed: 1) to assess the level and variety of the patient involvement activity; 2) to describe the relationships between institutions and patient organisations; 3) and to map the best practices in term of patient involvement and collaborations

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