Abstract
Context The RESTORE programme comprises a randomised controlled trial, three pilot trials, a cohort study, qualitative studies and systematic reviews. Since 2010, the patient panel (PEP-R), has inputted into RESTORE. Seventeen patients have been involved in total, 8 were recruited at the time of the evaluation. Through facilitated group sessions, PEP-R provides input into refinement of patient recruitment materials, intervention development, readability of outcome assessment tools, and dissemination of findings. Patients also sit on steering groups and receive training.
Highlights
Patients are increasingly involved in design and implementation of clinical studies
We evaluated impact of patient involvement in an NIHR supported research programme focusing on joint replacement: ‘RESTORE’
The model used in PEP-R facilitates patient involvement in the design and implementation of clinical research
Summary
Patients are increasingly involved in design and implementation of clinical studies. We evaluated impact of patient involvement in an NIHR supported research programme focusing on joint replacement: ‘RESTORE’. Since 2010, the patient panel (PEP-R), has inputted into RESTORE. Seventeen patients have been involved in total, 8 were recruited at the time of the evaluation. PEP-R provides input into refinement of patient recruitment materials, intervention development, readability of outcome assessment tools, and dissemination of findings. Patients sit on steering groups and receive training. Benefits of obtaining patients’ views on the importance, relevance and feasibility of their projects. They welcomed the opportunity to speak to an interested and knowledgeable group and stressed the importance of early involvement
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