Abstract
This study explores the experiences of patients using home ventilation, focusing on the challenges, benefits, and impacts on daily life and family dynamics. Through semi-structured interviews and focus groups with patients and their families, key themes emerged, including technical difficulties, discomfort, psychological impacts, and the overall benefits of home ventilation. Patients reported significant challenges such as equipment malfunctions and discomfort, which affected their adherence and quality of life. However, the benefits, including improved respiratory function and reduced healthcare burden, were notable. The integration of home ventilation into daily routines required adjustments, affecting both patients and family dynamics. The findings highlight the need for improved support and resources to enhance the home ventilation experience.
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