Patient–Dermatologist Gap in Perception of Disease Burden and Treatment of Generalized Pustular Psoriasis in Japan

Abstract

Aim: To investigate perceptions of dermatologists and patients with generalized pustular psoriasis (GPP), a severe skin disease involving systemic inflammation. Participants & methods: Selected dermatologists and their patients in Japan completed a web-based survey; topics included symptoms, disease information, treatment goals, and disease burden. Results: In total, 66 dermatologists and 46 patients took part. Nearly all patients (>90%) reported GPP-associated disease burden; the most frequently reported burden was skin symptoms. However, dermatologists prioritized systemic symptoms for treatment. Most patients aimed for completely clear skin, while fewer dermatologists considered it a treatment goal. Conclusion: Patient–dermatologist gaps exist in perceptions of treatment goals and communication, highlighting an important need for effective communication and shared decision-making to improve the disease burden of GPP.