Patient-centered palliative care in pediatric cardiology: a cardiophenomenological approach

M D Miroshnichenko,D I Nozdrachev

doi:10.15829/1560-4071-2020-4047

M D Miroshnichenko, D I Nozdrachev

Open Access

https://doi.org/10.15829/1560-4071-2020-4047

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Abstract

Despite the success of pediatric cardiology and cardiac surgery in the treatment of severe heart diseases in children, a significant increase in the average life expectancy and quality of life of patients, cardiovascular diseases remain common reasons leading to the need for palliative care. A number of psychological and ethical aspects in pediatric palliative care in cardiology are not sufficiently developed. Cardiac diseases requiring palliative care affect the physiological, psychological and social aspects of patients' lives, and require special attention. It is proposed to use the second-person methods in clinical communication based on the biopsychosocial approach of cardiophenomenology in order to provide a patient-centered environment in palliative care for children with severe heart diseases. Cardiophenomenology can provide non-paternalistic relationships in palliative care for pediatric patients with cardiovascular disease to improve health-related quality of life (HRQoL).

Highlights

Despite the success of pediatric cardiology and cardiac surgery in the treatment of severe heart diseases in children, a significant increase in the average life expectancy and quality of life of patients, cardiovascular diseases remain common reasons leading to the need for palliative care
It is proposed to use the second-person methods in clinical communication based on the biopsychosocial approach of cardiophenomenology in order to provide a patient-centered environment in palliative care for children with severe heart diseases
Пациент-центрированный паллиативный уход наце‐ ливается на восполнение социально-психологической, экзистенциальной нехватки в ситуации ожидаемого конца жизни, что отличает его от более традиционного куративного подхода

Summary

Introduction

Заболевания сердечно-сосудистой системы явля‐ ются одной из ведущих причин, приводящих к необ‐ ходимости оказания паллиативной помощи у детей. Клинические особенности тяжелых заболеваний сердца у детей Тяжелые заболевания сердечно-сосудистой сис‐ темы являются одной из ключевых нозологий, приво‐ дящих к необходимости паллиативной помощи в дет‐ ском возрасте, и одной из основных причин детской смертности от всех заболеваний.

Results

Conclusion