Pathoreactive Experiences of Epileptic Females: An Interpretative Phenomenological Analysis

Abstract

Background: Epilepsy is a prevalent neurological condition that affects individuals worldwide, with significant social and psychological impacts. Adolescent females with epilepsy in Pakistani society face unique challenges due to cultural perceptions, social stigma, and traditional beliefs regarding treatment. Understanding these challenges is crucial for developing effective support systems and interventions. Objective: This study aims to explore the pathoreactive experiences of adolescent females with epilepsy in Pakistan, focusing on the psychosomatic, social, and cultural barriers they encounter. The objective is to identify the specific needs of this group to inform targeted support strategies and public awareness campaigns. Methods: Employing a qualitative research design, this study utilized interpretative phenomenological analysis to delve into the experiences of adolescent females with epilepsy. Participants were selected through purposeful sampling from a government hospital in Lahore. Data were collected via in-depth interviews, transcribed verbatim, and analyzed using NVIVO-11 to identify themes and categories reflecting the participants' experiences. Results: The analysis revealed five key categories of challenges faced by the participants: psychosomatic difficulties, social withdrawal, family problems, superstitious beliefs, and the impact of social stigma. These findings highlight the complex interplay between epilepsy, cultural beliefs, and societal attitudes, underscoring the need for comprehensive support and public education. Conclusion: Adolescent females with epilepsy in Pakistan encounter a myriad of challenges that necessitate a multifaceted support approach. Addressing the psychosomatic issues, combating social stigma, and challenging traditional beliefs are essential steps towards improving their quality of life. Public awareness campaigns and culturally sensitive healthcare interventions are critical for de-stigmatizing epilepsy and promoting a more inclusive society.