Abstract

In recent decades, there has been remarkable growth in scholarship examining the usefulness of community-engaged research (CEnR) and community-based participatory research (CBPR) for eliminating health inequities. This article seeks to synthesize the extant literature of systematic reviews, scoping reviews, and other related reviews regarding the context, processes, and research designs and interventions underlying CEnR that optimize its effectiveness. Through a scoping review, we have utilized an empirically derived framework of CBPR to map this literature and identify key findings and priorities for future research. Our study found 100 reviews of CEnR that largely support the CBPR conceptual framework.

Highlights

  • In the last three decades, participatory research has become a well-recognized strategy to improve health equity [16, 17]

  • community-based participatory research (CBPR) and community-engaged research (CEnR) arose partially in response to historical research abuse within communities of color and other marginalized communities, wherein inequitable research relationships perpetuated deep-seated mistrust, with data often not returned to the community and community benefit not considered

  • A 2017 National Academies of Science (NAS) report clarifies the intermediary role that community-driven solutions play in achieving health equity [96], including informing collaborative efforts with local knowledges’ and contexts [66, 76, 88]

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Summary

Introduction

In the last three decades, participatory research has become a well-recognized strategy to improve health equity [16, 17]. Since the 2006 inception of the Clinical Translational Science Awards (CTSA), the National Institutes of Health (NIH) has more broadly adopted the terminology of community-engaged research (CEnR) to denote participatoryoriented research [46]. The NIH has integrated CEnR as key to reducing health inequities across disease conditions, increasing minority enrollment in research, diversifying the health workforce, augmenting implementation science, and enhancing external validity of research findings [40]. A 2017 National Academies of Science (NAS) report clarifies the intermediary role that community-driven solutions play in achieving health equity [96], including informing collaborative efforts with local knowledges’ and contexts [66, 76, 88]. We have provided definitions to provide greater clarity in differentiating these concepts. See the Supplemental Definitions for further explanation of these terms

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