Abstract

The goal of this study was to assess the utility of participatory needs assessment processes for continuous improvement of developing clinical and translational research (CTR) networks. Our approach expanded on evaluation strategies for CTR networks, centers, and institutes, which often survey stakeholders to identify infrastructure or resource needs, using the case example of the Great Plains IDeA-CTR Network. Our 4-stage approach (i.e., pre-assessment, data collection, implementation of needs assessment derived actions, monitoring of action plan) included a member survey (n = 357) and five subsequent small group sessions (n = 75 participants) to better characterize needs identified in the survey and to provide actionable recommendations. This participatory, mixed-methods needs assessment and strategic action planning process yielded 11 inter-related recommendations. These recommendations were presented to the CTR steering committee as inputs to develop detailed, prioritized action plans. Preliminary evaluation shows progress towards improved program capacity and effectiveness of the network to respond to member needs. The participatory, mixed-methods needs assessment and strategic planning process allowed a wide range of stakeholders to contribute to the development of actionable recommendations for network improvement, in line with the principles of team science.

Highlights

  • The National Institute of Health’s (NIH) investment in clinical and translational research (CTR) infrastructure and capacity development initiatives have been central to the advancement of scientific discovery for over a decade [1]

  • Despite progress related to investments in programs like the Clinical and Translational Science Awards (CTSAs), state-level participation in the production of NIH-funded, CTR research is significantly lower in some regions of the country when compared to others [3,4,5,6,7]

  • Participatory needs assessment processes represent an important opportunity for continuous improvement of developing CTR research networks [20,21].The goal of this process was to provide actionable information to the GP Institutional Development Award (IDeA)-CTR Administrative Key Component Activities (KCAs), KCA Directors, and institutional partners for strategic action planning to strengthen resources and services for clinical and translational research across the network

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Summary

Introduction

The National Institute of General Medical Sciences’ Institutional Development Award (IDeA) Program Infrastructure for Clinical and Translational Research (CTR) [IDeA-CTR] was established in 2011 to support the development of resources and infrastructure in states that have historically had less success competing for NIH funding [8]. The IDeA-CTR program led to the development of 11 regional multi-institutional networks to increase CTR in areas that have historically received lower levels of NIH funding. Similar to the CTSA program, each IDeA-CTR network includes cores – termed Key Component Activities (KCAs) – that provide resources and activities to support investigators in areas such as collaboration, professional development, community engagement, and research design [8]

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