Abstract
This paper aims to analyze the perspectives and meanings of social participation for the participants in a health program. A qualitative evaluation was conducted on the Andalusian Program against HIV/Aids and other sexually transmitted infections. The participants were selected through a theoretic sample: 20 HIV carriers, 19 representatives and volunteers from anti HIV associations and six administrative representatives. The information was obtained through semi-structured interviews and triangle groups; content analysis was performed. Participation has different meanings to the participant groups. HIV carriers consider it should be accomplished by communication mechanisms, support and prevention; association members consider it a right and a tool to change health policies, while two conceptions coexist among administrative representatives. The encouragement of participatory designs is proposed that respect the theoretical diversity and favor interaction based on distinct attitudes.
Highlights
The lack of financial resources and the demand for transparency in public management seem to explain the growing interest of health administrations in the incorporation of new relationship strategies with service users. These strategies include the encouragement of public participation and the development of health policy assessment programs.[1,2]
Public participation has been considered from different perspective as an attitude of solidarity, dialogue and concern with the management of collective life, as an organized activity by a group to express needs, demands or defend interests, and as the organized effort to enhance the control of resources or as an empowerment strategy of citizens with a view to equitable access to public resources.[3,4,5,6,7]
This study is part of a broader research aimed to designing an institutional proposal to enhance the participation and empowerment of carriers and patients, as well as the co-accountability of associations, in the PASIDA in Andalusia, Spain
Summary
The lack of financial resources and the demand for transparency in public management seem to explain the growing interest of health administrations in the incorporation of new relationship strategies with service users These strategies include the encouragement of public participation and the development of health policy assessment programs.[1,2] Public participation has been considered from different perspective as an attitude of solidarity, dialogue and concern with the management of collective life, as an organized activity by a group to express needs, demands or defend interests, and as the organized effort to enhance the control of resources or as an empowerment strategy of citizens with a view to equitable access to public resources.[3,4,5,6,7]. The associations usually develop other functions, such as awareness raising campaigns for vulnerable populations, fighting against the social stigmatization of the disease, implementing prevention and health promotion policies or establishing support networks.[8,9,10,11,12]
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