Parkinson’s Disease Videos on YouTube: Types and Characteristics of Content on Communication and Cognition

Abstract

Background Parkinson’s disease (PD), a neurodegenerative disorder causing declining motor, sensory, cognitive, language, and speech functions for millions worldwide, is becoming increasingly prevalent. Since YouTube is the most visited free online site, and often the first stop for information for the public, we examined the type and source of information available to viewers regarding PD. Methods We analyzed the 100 most viewed YouTube videos about PD for upload origin (news-media, professionals, consumers) and content relevant to cognitive and communication symptoms, therapies, and neurological issues. Results Videos posted by the news media were “liked” and commented on significantly more than those by professionals or consumers. Motor symptoms were presented in most videos (76%), while hypophonia was noted in only 7% of videos. Language and memory deficits were mentioned (24% and 11% respectively), as were anxiety, sleep, and other health problems (14%, 15%, and 43%). Medical treatments were noted in 37% of videos, with pharmacology trailed by neurosurgical and cannabis therapies (25%, 9%, and 3%). Little was noted of physical (7%), psychological (5%), or speech-language therapy (2%). Videos by professionals were longer and contained more therapy information than videos by news or consumers. Content depth and diversity were equivalent among sources of upload. Conclusions Communication disorders professionals are uniquely equipped to offer treatments that help maintain the quality of life of persons with PD. Speech-Language Pathologists should increase their media presence in the public health domain and provide effective information about cognitive and communication interventions for PD.