Abstract

Introduction: Children with intellectual disability have the same sexual needs as the average children. Parents are their children’s primary sex educators, but many parents are afraid of talking to their children about sex. The purpose of this study to explore the perception of parents in providing sex education to children with intellectual disability. Methods: A qualitative study using phenomenological approach. Focus group discussion (FGD) and in-depth interviews (face-to-face) with ten parents having children with mild or moderate intellectual disability, aged nine-eighteen years registered at SLB Negeri 1 Yogyakarta. Colaizzi method was used to identify core themes and patterns. Results: Four themes were found: the importance of sex education for children with intellectual disability, the mother has the most important role in providing sex education, the distinction of sex education for children with intellectual disability, religion is important in sex education. Conclusions: Perception of parents in providing sex education to children with intellectual disability is different from parents with normal children. Parents should be earlier deliver sex education to protect them from sex abuse and the method of giving sex education with practice. The role of parents, especially mother is very important to provide sex education than father.

Highlights

  • Children with intellectual disability have the same sexual needs as the averagechildren

  • Participants were parents of children aged 9-18 years with mild or moderate intellectual disability enrolled in Spesial Public School 1 (SLB 1) Yogyakarta, able to communicate and tell their experiences well in Indonesian language, and willing to sign informed consent

  • Five mothers and one father in the in-depth interview, three of them were participate in focus group discussion while the other one were not

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Summary

Introduction

Children with intellectual disability have the same sexual needs as the averagechildren. Parents are their children’s primary sex educators but many parents are afraid of talking to their children about sex. According to WHO, the number of children with intellectual disability is 7% of the total children aged 0-18 years, which was 5.698.000 in 2010 (Ministry of Women Empowerment and Child Protection, 2013). Based on Basic Health Research (Riset KesehatanDasar), the percentage of children aged months with intellectual disability was 0,14%. This number was only ranked behind quadriplegic (0,17%) and speech impaired (0,15%) The risk increased to 39-60% and 16-30% for female and male children with intellectual disability (Swango-Wilson, 2011)

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