Abstract

The qualitative exploratory descriptive study explored parents' experience of family-centred care during delayed transfer from a paediatric post-anaesthetic care unit to an inpatient ward. Data were collected in a tertiary children's hospital in Melbourne, Australia, using in-depth, semi-structured interviews. Participants (n = 15) were parents of children (n = 10, aged 6 months to 16years) delayed in a Stage 1 post-anaesthetic care unit for longer than 30min. Elements of the family-centred care framework guided thematic analysis, the core concepts of which are respect and dignity, information sharing, participation and collaboration. Respect and dignity was most often identified, expressed in three subthemes: (1) the caring behaviour of staff, (2) being present with their child and (3) a journey shared with other families. Information sharing was also common, illustrated through (1) being told information and (2) being heard. Participation, the third element of the framework, was infrequently identified by participants; however, parents of children under 6years of age alluded to contributing to their child's care. The final element, collaboration, was not identified in the study data. Only two of four elements of the family-centred care framework were common in parents' experiences: respect and dignity, and information sharing. 'Being with' their child emerged as a central concern for parents' perceptions of family-centred care.

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