Parenting experiences of fathers of children with autism spectrum disorder with or without intellectual disability.

Abstract

Fathers of children with autism spectrum disorder (ASD) report more challenges than fathers of typically developing children, which also negatively impacts their psychological well-being. Although not studied to the same extent in fathers of children with ASD, the challenges experienced by fathers of typically developing children have been shown to impact parenting behaviours. Many children with ASD also have intellectual disability (ID), which adds additional parenting stress. The purpose of this qualitative study was to examine perceptions of parenting roles and father-child relationship quality in fathers of children with ASD and ASD/ID. Twenty-eight fathers of children with ASD (n=12) and ASD/ID (n=16) completed a telephone interview. A phenomenological approach was used by two investigators to analyse the interviews. Both investigators coded the interviews and then discussed the final themes. Five major themes emerged. One theme that emerged was pre-birth expectations, and the remaining themes related to the post-diagnosis period: adjustments, experiences, co-parenting and quality of father-child relationship. Both fathers of a child with ASD and ASD/ID reported on all themes. Overall, fathers of children with ASD and ASD/ID reported similarly on the themes that emerged. Future research with more diverse samples is needed to continue to understand the fatherhood experience. The findings of this study have implications for the development of parent-focused programmes that are tailored to fathers' unique experiences.