Parent Perspectives on Early Intervention: The Paradox of Needs and Rights

Abstract

The aim of this study is to describe conceptions of support in early intervention in Sweden, as perceived by parents to young children with disabilities. Data were collected through in-depth interviews with eight parents and were analyzed with a qualitative approach. The theoretical framework is based on developmental ecology and empowerment and the results are discussed in relation to theory and empirical studies. The results show that parents experience discrepancies between their needs and received support. The paradoxical effects of need fulfillment and empowerment that occur in parent-professional interaction are highlighted and points to needs for future research about filling needs and providing support through encounters between parents to children with disabilities and professionals. Collaboration in the intervention process using the expertise of both parents and professionals is also discussed.The aim of this study is to describe conceptions of support in early intervention in Sweden, as perceived by parents to young children with disabilities. Data were collected through in-depth interviews with eight parents and were analyzed with a qualitative approach. The theoretical framework is based on developmental ecology and empowerment and the results are discussed in relation to theory and empirical studies. The results show that parents experience discrepancies between their needs and received support. The paradoxical effects of need fulfillment and empowerment that occur in parent-professional interaction are highlighted and points to needs for future research about filling needs and providing support through encounters between parents to children with disabilities and professionals. Collaboration in the intervention process using the expertise of both parents and professionals is also discussed.