Paradigms Lost: Fighting Stigma and the Lessons Learned

Abstract

Preface -Part I Eroding Paradigms Chapter 1 Introduction - The nature and nurture of stigma The origins and meaning of stigma Consequences of stigma for people with a mental illness Consequences for family members Consequences of stigma for mental health systems and societies Anti-stigma initiatives are growing Chapter 2 Paradigm 1: Developed countries have eradicated systemic discrimination on the grounds of mental illness Mental health development Employment inequity NIMBYISM, homelessness, and the inverse care law Media depictions and public tolerance Chapter 3 Paradigm 2: In developing countries, people with mental illnesses are not stigmatized Exploding the myth Stigma in other cultures Islamic cultures Chinese culture Indian culture Chapter 4 Paradigm 3: The fight against stigma must be based on well-developed long term specific and comprehensive plans A case for enlightened opportunism Networks of practice Network governance and leadership General principles, rather than specific plans guide anti-stigma activities Chapter 5 Paradigm 4: Scientific evidence will best define the targets of anti-stigma work Evidence-based advocacy Evidence is in the eye of the beholder To be successful, programs must target local needs To be successful programs must build better practices Chapter 6 Paradigm 5: Mental health professionals should lead anti-stigma programs Mental health professionals are worthy targets of anti-stigma programs Stigma in general health care settings Mental health systems as agents of social control What can mental health professionals do differently? Chapter 7 Paradigm 6: Improving knowledge about mental illnesses will reduce stigma and discrimination The nature of prejudice Can prejudice respond to nuggets of knowledge? What about mental health literacy? Anti-stigma programs as purveyors of medical knowledge Chapter 8 Paradigm 7: An anti-stigma program is successful if it changes attitudes The knowledge-attitude-behaviour continuum 'What we dont know about prejudice reduction How much change is change? When are anti-stigma programs successful? Environments are not just containers Chapter 9 Paradigm 8: Community care for the mentally ill will destigmatize mental illness and psychiatry Stigma as a consequence of institutionalization Stigma as a consequence of community care Stigma as a social barrier to recovery Chapter 10 Paradigm 9: Campaigns are an excellent way of reducing stigma The cause de jour Can social inclusion be sold like soap? Chapter 11 Paradigm 10: Anti-stigma programs should be built on the premise that mental illness is like any other illness Forced confinement and treatment Anti-psychiatry sentiments Violence and unpredictability An illness like any other? Chapter 12 Paradigm 11: The stigma of mental illness is too deeply ingrained to prevent or reduce it The importance of fighting back -Overcoming NIMBYISMthe Not in My Backyard Syndrome Changing the way emergency departments do business Connecting with teachers and students Engaging the police Engaging the media Can community projects make a population difference? -Chapter 13 Summary of Part 1 -Implications for anti-stigma programming paradigms lost -Part II Building Programs Against Stigma and its Consequences Chapter 14 - Getting going Introduction Developing a program committee Creating an advisory committee Setting clear goals Creating interes Acquiring and monitoring resources Writing a successful funding application Chapter summary and chapter checklist Chapter 15 - Identifying program priorities Identifying program priorities through qualitative investigation Focus groups Steps in conducting a focus group Troubleshooting in focus groups Analysis of focus group data Identifying program priorities using semi-structured interviews Identifying program priorities using surveys Chapter summary and chapter checklist Chapter 16 - Program development Picking target groups Journalists Youth Health professionals Members of community neighbourhoods Police Policy makers and legislators Choosing a program approach Creating a program logic model Including people who have experienced a mental illness in program delivery Families Using media wisely Working with external media experts Working with television Working with radio Working with the arts Pilot testing Chapter summary and chapter checklist Chapter 17 - Program monitoring and evaluation Using qualitative data to monitor program implementation Assessing change Specification of program outcomes Setting performance targets Devising and implementing a data collection plan Data management and analysis Identifying lessons learned Ethical issues in evaluation Communicating results Chapter summary and chapter checklist Bibliography and Suggested Readings The Nature of Stigma Evaluation Methods Works Cited Appendix: Inventories of Stigma Experiences Personal Experiences with the Stigma of Mental Illness Family Experiences with the Stigma of Mental Illness Appendix Index