Palliative patients cared for at home by PAMINO-trained and other GPs – health-related quality of life as measured by QLQ-C15-PAL and POS

Katja Hermann,Antje Miksch,Joachim Szecsenyi,Peter Engeser

doi:10.1186/1472-684x-11-13

Katja Hermann, Antje Miksch + Show 2 more

Open Access

https://doi.org/10.1186/1472-684x-11-13

Copy DOI

Abstract

BackgroundTo maintain patients’ quality of life is one of the major goals in palliative home care provided by general practitioners (GPs). GPs need adequate training to care for palliative patients. The paper seeks to evaluate whether a specific training in Germany (PAMINO) has any improving impact on the care of palliative patients and their health-related quality of life.MethodsFrom September 2007 until June 2009, GPs and their palliative care patients with cancer participated in a study to evaluate palliative courses for GPs offered by a regional palliative care initiative (PAMINO). For a period of six months at most or until death, patients were asked monthly to judge their quality of life on the Quality of Life Questionnaire Core 15 Palliative (QLQ-C15-PAL) of the European Organization for Research and Treatment of Cancer (EORTC) and on the Palliative Care Outcome Scale (POS). The ‘Overall quality of life’ scale of the QLQ-C15-PAL takes values between 0 and 100 with higher values indicating a higher quality of life. The POS sum scale takes values between 0 and 40 with higher values indicating worse care outcomes. Patients cared for by PAMINO-trained GPs and patients cared for by other GPs (control group) are compared using t-tests for differences in group means.ResultsOne hundred patients participated in the study; 96 patients filled out the questionnaires at least once. On the QLQ-C15-PAL, mean quality of life of the patient groups of PAMINO-trained and other GPs were 37.7 (SD = 25.5) and 39.4 (SD = 26.3) (p = .76), respectively. On the POS, respective mean values of 13.6 (SD = 5.8) and 12.0 (SD = 6.5) (p = .26) were given. Patients cared for by a PAMINO-trained GP did not report better quality of life and care outcomes than patients cared for by other general practitioners.ConclusionsPatients cared for by PAMINO-trained and other GPs in our study did not report differences in quality of life. Quality of life and care outcomes of all patients were better than of palliative patients in institutional or specialized care, emphasizing the ability of GPs to provide adequate care for these vulnerable patients. However, conclusions need to be drawn cautiously since the study had a small sample size.Trial registrationCurrent Controlled Trials ISRCTN78021852

Highlights

To maintain patients’ quality of life is one of the major goals in palliative home care provided by general practitioners (GPs)
For a period of six months or until death, patients were asked monthly to judge their quality of life on the Quality of Life Questionnaire Core 15 Palliative (QLQ-C15-PAL) of the European Organization for Research and Treatment of Cancer (EORTC) [7] and on the Palliative Care Outcome Scale (POS) [8]
GP and patient sample There were 100 patients cared for by 45 GPs participating in the study

Summary

Introduction

To maintain patients’ quality of life is one of the major goals in palliative home care provided by general practitioners (GPs). For patients cared for at home, general practitioners (GPs) play an important role in providing the necessary medical support, since they are often the first and major contact person for patients and caregivers. They know private and familial circumstances and are long-term confidants of the patients. Once physicians receive a board certification as a specialist, they might further train to get an additional qualification in palliative medicine This additional qualification is not a prerequisite for caring for palliative patients

Methods

Results

Discussion

Conclusion