Palliative Care Needs of Young and Middle Age Adults (20-59) with Cancer: A Pilot Study (FR460C)

Abstract

•Identify three unique palliative care needs of an adult (20-59) with a life limiting cancer.•Discuss quality of life issues related to this cancer population. The diagnosis of a potentially life-threatening cancer is a documented stress that encompasses biological, cognitive and socioemotional dimensions. Early introduction to palliative care is important in addressing stress and its outcomes. For young and middle-aged adult (20-59), this diagnosis creates unique needs of which little is known. This mixed methods descriptive research pilot study explores and describes the palliative and supportive care issues and needs of young and middle age adults (20-29) with a potentially life limiting cancer diagnosis. A convenience sample of 8 oncology patients completed a demographic survey and two questionnaires relating to quality of life and functional health status. In addition, they were asked seven open ended structured survey questions relating to personal descriptions of quality of life, available resources, and personal understanding of palliative care. Quality of Life Dimensions are significantly impacted including physical, psychological, and social factors. Several reoccurring themes associated with their age and diagnosis also emerged including delayed diagnosis, employment and financial issues. The majority of this population lives in rural communities with limited access to resources. Finally, none of the participants could accurately describe palliative care and only 15% had been introduced to palliative care services while being treated for their cancer. All dimensions associated with quality of life are impacted by the diagnosis of cancer for a young and middle age adult. Palliative care is a resource that could help address some of these needs. Clearly for this population, palliative care is not being well communicated or integrated in this primarily rural young cancer population