Abstract

Increasing cases of emerging and re-emerging infectious diseases, requires healthcare systems to provide essential palliative care for critically ill patients and their families. With the rapid onset and often accelerated deterioration in patients with acute conditions, palliative and supportive care for these patients have different characteristics compared to those for chronic diseases. Furthermore, providing end-of life services for critically ill patients with acute diseases and their families to ensure good death for the patients, will also have its own challenges. This scoping review aims to explore the concept of palliative care and good death for acute diseases. This scoping review will be conducted using the Arksey and O’Malley's framework for scoping reviews: identifying the research question, identifying relevant studies, study selection, charting the data, collating, summarizing, reporting results, and conducting consultation. All original research with a focus on palliative care and good death due to acute diseases will be included. This review will include all original research designs published between the period of 2000–2021 that describe a measure of palliative care management for and good death due to acute diseases. Quantitative, qualitative and mixed-method studies will be included in order to consider different aspects of healthcare services. This review will also include guidelines and gray literature on palliative care and good deaths. The search will be conducted through PubMed, Scopus Database, and ScienceDirect using the key terms related to acute disease palliative care and the concept of good death due to acute diseases. Two authors will screen the titles and abstracts of the studies. Two authors will review the full text of selected studies independently and extract the data. All selected studies will be synthesized qualitatively, and the results will be consulted with experts through discussion and depict the current concept of palliative care and good death in acute diseases.

Highlights

  • Palliative care is provided for a person with an active, progressive and advanced disease who is in serious or lifethreatening health conditions.[1,2] Palliative care aims to optimize the quality of life and addresses physical suffering of the patient

  • There are two types of palliative care, namely terminal palliative care which focuses on the treatment of immediate disease symptoms, and early palliative care that provides patients and family members support for coping with the diagnosis and helps balance decision-making between values and preferences of the patient and realistic expectations of the outcome of treatment.[9]

  • There is a lack of information on the ideal concept of palliative care and good death in acute disease from the perspective of patients, family or caregivers, as well as healthcare providers. This scoping review aims to explore the concept of palliative care and good death for acute diseases from the perspective of patients, families, and providers, depicting the existing palliative care and good death concepts, and providing recommendation on the ideal concept of palliative care and good death in acute diseases

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Summary

12 Nov 2021 report

Any reports and responses or comments on the article can be found at the end of the article. Palliative care, acute disease, infectious disease, health systems

Introduction
Aim Population Research methods
Ireland AW
13. Kellett J
15. Campbell SM
18. Borgstrom E
20. The Joanna Briggs Institute
Full Text
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