Pain, mood, and functional status in youth with sickle cell disease hospitalized for pain

Abstract

Youth with sickle cell disease (SCD) are frequently hospitalized for severe episodes of pain. As part of a validation study of a new acute pain functional assessment tool we collected data at a single time point during hospitalization on a sample consisting of 159 unique SCD patients (55.3% female, 86% African American, 67% Hgb SS), ages 7-21 years (M=15.73, SD=3.63) who were admitted for vaso-occlusive episode at four urban children hospitals in the eastern United States. In this sample we describe current pain intensity, functional motor status (Functional Independence Measure; FIM), and mood (Positive Affect-Negative Affect Scale for Children; PANAS-C) as well as pain burden (Sickle Cell Pain Burden Interview-Youth; SCBPI-Y), functional status (Child Activity Limitations Interview; CALI), and quality of life (Pediatric Quality of Life Inventory; PedsQL) over the previous four weeks.