Abstract

There is a great need for paediatric palliative care (PPC) services globally, but access to services is lacking in many parts of the world, particularly in resource-poor settings. Globally it is estimated that 21.6 million children need access to palliative care, with 8.2 needing specialist services. PC has been identified as important within the global health agenda e.g., within universal health coverage, and a recent Lancet commission report recognised the need for PPC. However, a variety of challenges have been identified to PPC development globally such as: access to treatment, access to medications such as oral morphine, opiophobia, a lack of trained health and social care professionals, a lack of PPC policies and a lack of awareness about PPC. These challenges can be overcome utilising a variety of strategies including advocacy and public awareness, education, access to medications, implementation and research. Examples will be discussed impacting on the provision of PPC in resource-poor settings. High-quality PPC service provision can be provided with resource-poor settings, and there is an urgent need to scale up affordable, accessible, and quality PPC services globally to ensure that all children needing palliative care can access it.

Highlights

  • There is a need for paediatric palliative care (PPC) services around the world, yet access to services remains intermittent and at times non-existent, in many Lower- and Middle-IncomeCountries (LMICs)

  • This paper will explore the need for PPC globally, and in Lower- and Middle-IncomeCountries (LMICs), along with challenges to service provision and how these challenges can be overcome through advocacy and public awareness, education, access to medications, implementation and research

  • Whilst recognising that children who need palliative care face tremendous barriers to accessing it, and removing these barriers must be a priority, and providing some child related recommendations, they call on a future Lancet Commission to focus on the issue of palliative care for children, acknowledging that the area could not be fully covered within the scope of the existing commission

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Summary

Introduction

There is a need for paediatric palliative care (PPC) services around the world, yet access to services remains intermittent and at times non-existent, in many Lower- and Middle-Income. There are various good quality services in LMICs that have successfully overcome some of the challenges to provision. This paper will explore the need for PPC globally, and in LMICs, along with challenges to service provision and how these challenges can be overcome through advocacy and public awareness, education, access to medications, implementation and research

The Need for Paediatric Palliative Care
Challenges to PPC Development in LMICs
Advocacy and Public Awareness
Education
Access to Medications
Implementation of PPC
Research
Findings
Conclusions
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