P590 Allogeneic mesenchymal stromal cells for biologic refractory luminal Crohn's disease

Abstract

organization/service delivery they would like to receive. The aim of this study was to explore pts’ needs for FU care, their experience of the system and how they would wish it to be reorganised. Methods: Qualitative interviews with 24 IBD pts were conducted. 18 pts had CD, 6 UC. Age range 27 72 years, disease duration range 2 40yrs. Interviews were 40 60 mins duration. Pts were asked about the role of FU, their experience of FU patterns, service delivery and other modes of FU. Thematic analysis of interviews was undertaken using NVivo 9.0. Results: Four themes were identified. (1) Frustration: pts expressed frustration at the traditional model of FU with inflexible, over booked, delayed clinics. (2) Lack of integrated primary and secondary care: no pts consulted their GP about IBD, none were directed to the GP by secondary care and told to contact the hospital if there were any problems. All pts welcomed GP involvement providing that the specialist would still oversee their management. (3) Value of the IBD nurse: this was evident throughout, as a significant point of contact and support. (4) No need for FU when well: pts did not want to be seen when well. They stated that this was a waste of both their time and the healthcare professionals. Recommendations for FU: pts recommended patient-initiated appointment systems, use of telemedicine/telephone including ‘virtual’ clinics, greater emphasis on self management, more involvement of their GP, the need for an IBD nurse at interface of primary and secondary care, flexible timing of clinics and only to be seen rapidly when flaring up, or compulsory appointments. Conclusions: This study provides a unique insight into the FU needs of IBD pts. Pts want flexibility and choice, not to be seen when ‘well’ and to be seen rapidly when unwell. Pts welcome new and innovative approaches to FU. Pts do not want to be discharged from the secondary care system and the specialist must still be involved with their overall management.