P0480 / #1216: THE ACCESS OF INFORMATION BY THE FAMILY OF NEWBORNS AT NEONATAL INTENSIVE CARE UNIT

Abstract

Aims & Objectives: The information regarding newborn´s clinical health conditions is one of the needs of families at NICU. According to patient and Family Care Model, shared information is an essential support for families. Therefore, it is imperative to measure how the family perceive the access of information to evaluate their participation and the quality of care. Objectives: To measure the perception of shared information access by families at NICU. Methods: Survey conducted with 43 family members of newborns admitted at a neonatal intensive care unit in the city of Sao Paulo, Brazil. Data collection included the appliance of a sociodemographic questionnaire and the Access to Shared Information Instrument after the approval by the university ethics committee. Data were analyzed descriptively and analytically. Results: The majority of participants were mothers; median of age 32,3; and prematurity was the most prevalent diagnosis of infants on admission. The average of overall score of access to shared information was 3,2 (almost always). The highest scores were: “the information helps me to take care of my child” (3,93); “I receive information about the care of my child at different moments at his hospitalization”(3,86). The lowest score was: “I receive detailed and written information about my child (1,79). Conclusions: The study highlights the importance of the access of information for the newborn´s family at NICU. Families validated the information as a support for them to care for the infant. More investment on innovative ways to share information with families on this context of care is necessary