P0468 / #674: PICU MOBILE APPLICATION FOR PARENTS: INSIGHTS FROM PARENT CONSULTATION QUESTIONNAIRE

Abstract

Aims & Objectives: The Great Ormond Street Hospital (GOSH) parent support group highlighted that a mobile phone application (app) providing information during their child’s PICU stay would be helpful. To inform the desired content for such an app, we surveyed parents of past and present patients. Methods: A paper questionnaire was designed by the authors. The questionnaire was distributed to parents on GOSH PICU during a 3 week period in 2019 and disseminated at a past patient event. Results: Thirty-three of the 40 distributed questionnaires were completed (82% response rate). Thirty-two (97%) of parents said they would use a PICU app. Information about bedside equipment 32 (97%) and medications 29 (87.9%) were the most important content for parents. Information about specific conditions 24 (84.8%), the hospital 28 (84.8%), the surrounding area 26 (78.8%) and research undertaken on ICU 20 (60%) were also sought. The majority of parents would want to use the app to communicate with the clinical team in addition to the usual face-to-face contact. Twenty-four (75%) of parents would value a diary feature and the majority 30 (90.9%) would consider using the app to stay in touch with PICU following discharge. Conclusions: Parents would like access to a unit specific intensive care app to use both during their child’s stay and to maintain contact following discharge. Parents would like the app to both provide information and allow them to communicate with their clinical teams. The ability to document their child’s PICU journey was also of note.