Abstract

Introduction: The incidence of paediatric IBD (PIBD) has never been reported in New South Wales (NSW), Australia. We describe our experience in PIBD over 45 years at the Children’s Hospital at Westmead (CHW), the largest tertiary paediatric centre in NSW. Methods: Cases of PIBD from 1968 to 2013 were ascertained from lists kept prospectively by clinicians. Clinical notes were reviewed for demographic and clinical details. NSW periodic census data were used for the catchment population denominator in the assessment of incidence. We estimate that two thirds of the PIBD patients in NSW were managed at CHW based on published hospital activity data. Results: During the study period, 684 cases of IBD (CD 404, UC 238, IBD-U 42) were managed in CHW. Age of diagnosis range from 6 weeks old to 17 years old (mean 10.68, median 11.33). At diagnosis, 67% were older than 10 and 10% were younger than 5. Male to female ratio was 1.3:1. In the 1970s, 1980s, 1990s, 2000s, and 201

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