Abstract
Abstract Cross-cultural studies in East-Asia are needed in educational psychology research because past-studies have found that having a child in the family with a developmental disability can induce feelings of stress, impose major psychological and social adjustments, increase the burden of care and place the entire family at risk. Chinese participants have been under-represented in family studies for some time and language issues have been identified as a recurrent barrier to research participation by Chinese samples. The three major reasons for non-participation are the lack of translated materials, feeling intimidated by English, and the lack of translation of key words. To increase participation in survey research projects, it is clear that first one must remove language barriers. The Impact on Family Scale [1] is a measure that has repeatedly shown good construct validity in assessing the impact of chronic illness on family functioning. Like many health status questionnaires, the Impact on Family Scale was developed in an English-speaking country. The aim of the present study was to develop a Hong Kong Chinese version of the Impact on Family Scale for parents of children with autism to make it culturally viable for Cantonese speaking and traditional script reading participants.
Highlights
3.1 Motivation autism spectrum disorders (ASD) have been recognized since the 1940s in Western countries [2], ASD is not generally well understood by the Asian community [3,4]
The TC-IFS was generated through a very rigorous method of translation and adaptive procedures proposed by Beaton [35], which included pretesting with interviews using a standardized protocol, as well as negotiation between local language experts, local researchers and the developer
It is hoped that a long-term application of the present study might increase the participation of Hong Kong Chinese parents raising children with ASD in family impact research
Summary
3.1 Motivation autism spectrum disorders (ASD) have been recognized since the 1940s in Western countries [2], ASD is not generally well understood by the Asian community [3,4]. Studies are especially important in the context of the traditional values in Hong Kong because Chinese family members consider themselves to be responsible for taking care of each other [20] This is known as filial piety [4]. 5. Materials and Methods 5.1 Participants The total sample for this study consisted of 137 parents from Hong Kong Chinese families who were rearing at least one family member who had been diagnosed with ASD between the ages of 3–18 years. Materials and Methods 5.1 Participants The total sample for this study consisted of 137 parents from Hong Kong Chinese families who were rearing at least one family member who had been diagnosed with ASD between the ages of 3–18 years This age group was chosen as it relates to the school age years and should highlight a range of information, educational and support needs by families. The step involved collecting data on the parents’ perception of the impact of their child’s disability on family behaviour via the use of the Traditional Chinese version of the Impact on Family Scale (TCIFS)
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