Abstract
to identify the outlining of therapeutic itineraries of families of children with disabilities in the professional health care subsystem. qualitative research carried out in two specialized services in the state of Ceará, with 41 family members interviewed using the life path technique and reports submitted to descending hierarchical classification and similitude analysis, with the help of the IRaMuTeQ software and the theoretical framework of health care systems. the classes described the families' itineraries in five paths, related to faith, support structures, medical behaviors, professionals, and health services. The professional subsystem stood out as deficient in outlining the therapeutic itinerary for access to health care for children with disabilities, without promoting integration between services in the Care Network. the families' therapeutic itineraries showed homogeneous discourse with themes related to the care of professionals and spiritual aspects.
Highlights
Families of children with disabilities may be isolated and face discrimination, which can result in social exclusion and limited use of available resources[1]
The corpus from families whose children were assisted in the Núcleo de Estimulação Precoce (NEP) was divided into 473 text segments (TSes), and the descending hierarchical classification (DHC) retained 376 of them (79.5% of the total), originating four classes
The lexical terms grouped within the respective DHC classes, when examined in the light of the theoretical framework of health care systems, allowed the elucidation of the meanings contained therein and outlined the naming of the four trajectories taken by families registered in the NEP regarding their search for care with the disabled child
Summary
Families of children with disabilities may be isolated and face discrimination, which can result in social exclusion and limited use of available resources[1]. Such problems occur because disabled children are in a situation of greater fragility and vulnerability due to their chronic health conditions. Difficulties begin with the child’s diagnosis and the feelings that come with this new reality, causing suffering, denial, fear, and anguish. This situation prevents or limits the search for health services’ guidance and care[3], being the object of study of this research
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