Abstract

BACKGROUND. With an increasing elderly population, the number of persons with dementia is expected to increase and, consequently, the number of persons needing decision-making capacity assessments (DMCA) is too. However, many healthcare professionals do not feel ready to provide DMCAs. Since 2006, we implemented a DMCA Model that includes a care pathway, worksheets, education, and mentoring. The objective of this study was to assess the impact of the utilization of this patient-centered DMCA model on the need for Capacity Interviews. METHODS. This was a retrospective quality assurance chart review of patients referred for DMCA to the Geriatric Service at the Grey Nuns Community Hospital from 2006–2020. The Geriatric Service is run by Family Physicians with extra training in Care of the Elderly. We extracted patient demographics, elements of the DMCA process, and whether Capacity Interviews were performed. We used descriptive statistics to summarize the data. RESULTS. Eighty-eight patients were referred for DMCAs, with a mean age of 76 years (SD = 10.5). Dementia affected 43.2% (38/88) of patients. Valid reasons for conducting a DMCA were evident in 93% (80/86) of referrals, and DMCAs were performed in 72.6% (61/84). 85.3% (58/68) of referrals identified the need for DMCA in two to four domains, most commonly accommodation, healthcare, and finances. Two to three disciplines, frequently social workers and occupational therapists, were involved in conducting the DMCAs for 67.2% (39/58) of patients. The Capacity Assessment Process Worksheet was used 63.2% of the time. Capacity Interviews were conducted in only 20.7% of referrals. Following the DMCAs, 48.2% (41/85) of those assessed were deemed to lack capacity. CONCLUSION. This study suggests that the DMCA Model implemented has decreased the need for Capacity Interviews while simultaneously respecting patient autonomy. This is an important finding as DMCAs carried out following this process reduced the need for both a Capacity Interview and declarations of incapacity while simultaneously respecting patient autonomy and supporting patients in their decisions in accordance with the legislation.

Highlights

  • This paper provides results from decision-making capacity assessments (DMCA) evaluation outcomes requested and conducted at the Grey Nuns Community Hospital from 2006–2020, a site where extensive education had been provided on the DMCA Model and DMCAs conducted

  • The study suggests that the DMCA Model implemented at Grey Nuns Community

  • DMCAs conducted with fidelity reduced the need for the Capacity Interview and declarations of incapacity while simultaneously respecting patient autonomy and supporting patients in their decisions in accordance with the legislation

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Summary

Introduction

Capacity is a person’s ability to make informed decisions. This involves understanding information and making a choice consistent with one’s preferences and beliefs [1,2,3,4]. A lack of capacity can lead to improper decision-making, which can result in harm to self and others. Over the past few years, Canada’s elderly population has been increasing and, with it, the number of patients with cognitive impairments either due to dementia, other neurological disorders, or chronic medical conditions [3,5,6,7,8]. COVID-19 and associated physical illness or stress on mental health can potentially compromise a person’s ability to make sound decisions. Health care professionals (HCPs) are required to

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