Abstract
Opting for DBS: The Role of Patients’ Associations between Scientific and Humanistic Knowledge
Highlights
Today a doubt is creeping among the associations: that they are going from one extreme to the other
Upon leaving the neurologist’s office with a diagnosis of Parkinson’s disease (PD), you were stuck with the feeling of having received a really bad piece of news while – at the same time – not having the tools necessary to fully understand such diagnosis and its impact on your life
Considering that nowadays the information to the patients is taken for granted, it may be worth finding out if there are other kinds of knowledge the associations could take care of that might prove to be useful in order to improve the patient’s quality of life. From this perspective the associations could be of real service if they broadened their mission to include a humanistic knowledge attentive to the physical needs of the suffering human beings and to the emotional, intellectual, and spiritual ones
Summary
Today a doubt is creeping among the associations: that they are going from one extreme to the other. Opting for DBS: the role of patients’ associations between scientific and humanistic knowledge
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