Abstract

BackgroundIn order to better understand people in demanding medical situations, an awareness of existential concerns is important. Studies performed over the last twenty years conclude that when dying and death come closer, as in the case with older people who are stricken by infirmity and diseases, existential concerns will come to the fore. However, studies concerning experiences of existential loneliness (EL) are sparse and, in addition, there is no clear definition of EL. EL is described as a complex phenomenon and referred to as a condition of life, an experience, and a process of inner growth. Listening to someone who knows the older person well, as significant others often do, may be one way of learning more about EL.MethodsThis study is part of a larger research project on EL, the LONE study, where EL is explored through interviews with frail older people, their significant others and health care professionals. The aim of this study was to explore frail older (>75) persons’ EL, as interpreted by their significant others. The study is qualitative and based on eighteen narrative interviews with nineteen significant others of older persons. The data was analysed using Hsieh and Shannon’s conventional content analysis.ResultsAccording to the interpretation of significant others, the older persons experience EL (1) when they are increasingly limited in body and space, (2) when they are in a process of disconnecting, and (3) when they are disconnected from the outside world.ConclusionThe result can be understood as if the frail older person is in a process of letting go of life. This process involves the body, in that the older person is increasingly limited in his/her physical abilities. The older person’s long-term relationships are gradually lost, and finally the process entails the older person’s increasingly withdrawing into him- or herself and turning off the outside world. The result of this study is consistent with previous research that has shown that EL is a complex phenomenon, but the implications of this research include a deepened understanding of EL. In addition, the study highlights the interpretations of significant others.

Highlights

  • In order to better understand people in demanding medical situations, an awareness of existential concerns is important

  • The result of this study shows that the significant others perceive that the older persons experience existential loneliness (EL) (1) when they are increasingly limited in body and space, (2) when they are in a process of disconnecting, and (3) when they are disconnected from the outside world

  • This study shows that significant others feel that the older person can experience EL even in a social context, and that there is a need to further explore the impact of the absence of relational anchorage on EL in older persons

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Summary

Introduction

In order to better understand people in demanding medical situations, an awareness of existential concerns is important. With advances in medicine helping more people to live longer lives, the number of people over the age of 60 is expected to double within the thirty years and reach two billion [1] This demands radical societal changes, especially in order to ensure well-being, meaningfulness, and dignity for older people [2]. In order to provide adequate care and obtain a better understanding of how to meet older people in situations where existential needs appear, additional research on existential concerns is called for

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