Abstract
The purpose of this study was to understand the impact on the family following a diagnosis of cancer in a child and to describe how the family members perceive the care provided by the health services. It consists of a qualitative study based on Heidegger's existential phenomenology. The study involved the participation of five families that experienced a child with cancer undergoing care. The spoken and gesticulated language of the interviewees revealed the great impact suffered following the diagnosis of cancer, a time in which the possibility of death of the child is translated into feelings of anxiety, pain and uncertainty. It was also evidenced that the care provided by health services presents unexpected change and challenges during the therapeutic journey of the disease. The importance of the results resides in the fact that they allow health professionals to reflect regarding their daily practices, as well as contemplating the matter of including the family in the therapeutic process of the child with cancer. Descriptors: Child Health (Public Health); Family Health; Medical Oncology; Nursing.
Highlights
The purpose of this study was to understand the impact on the family following a diagnosis of cancer in a child and to describe how the family members perceive the care provided by the health services
Sejam elas transitórias ou definitivas essas mudanças podem repercutir negativamente em seu cotidiano afetando a todos que estejam vivenciando esse processo ao seu lado(2)
Ao entrarmos em contato com a realidade de mães e pais de crianças doentes de câncer nós nos deparamos com a vivência do turbilhão de sentimentos, de pensamentos revirados, que os levam a uma viagem de volta ao passado
Summary
O impacto do diagnóstico do câncer infantil no ambiente familiar e o cuidado recebido The impact of cancer diagnosis in a child on the family environment and the care received. RESUMO O objetivo deste estudo foi apreender o impacto ocorrido no seio familiar após o diagnóstico de câncer em um filho e descrever de que maneira os mesmos percebem os cuidados prestados pelos serviços de saúde. Fizeram parte do estudo cinco famílias que vivenciavam o cuidar de um filho com câncer. A linguagem falada e gesticulada dos depoentes revelou-nos o grande impacto frente ao recebimento do diagnóstico de câncer, momento em que a possibilidade da finitude do filho traduziu-se em sentimentos de angústia, medo, dor e incertezas. A importância dos resultados encontrados reside no fato de permitir aos profissionais de saúde refletir sobre suas práticas cotidianas, e no mérito de se incluir a família no processo terapêutico da criança com câncer.
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