NURS-16. CREATING A STANDARDISED DOCUMENT FOR EDUCATION SETTINGS ACROSS THE UNITED KINGDOM FOR CHILDREN WITH CENTRAL NERVOUS SYSTEM TUMOURS

Abstract

Abstract There are currently nineteen Principle Treatment Centres (PTC) in the UK delivering care to children, aged 0-19, following diagnosis of a Central Nervous System (CNS) tumour. Every centre promotes inclusivity and the safe and successful return to education, however reintegration can be a challenging process for this complex group of patients and there is a vast amount of information available. At present each PTC provides their own personalised document, including a list of resources, to signpost the education setting to appropriate information. With the collaboration of participating PTC’s, our aim was to create a standardised document for education settings to utilise following a child’s CNS diagnosis. Each of the nineteen PTC’s were approached, requesting representation from a neuro oncology nurse specialist and the sharing of their bespoke information. Following this, benchmarking criteria were created and each document reviewed and evaluated. The review and evaluation process also included websites and information leaflets that centres currently signpost to, from charities and other relevant organisations. By working closely together as a national group of neuro oncology nurses, we have created a standardised document and list of suitable resources for education settings. The finalised document will be shared with each PTC, with the intention of promoting a smooth transition back into education and quality and equity of information for all children, irrespective of where they live in the UK. Auditing of the document will be part of the ongoing work of the group.