NeuroSask Active and Connected: A neurorehab 2-way knowledge mobilization initiative

Abstract

<h3>Research Objectives</h3> To use a virtual program to mobilize evidence-based knowledge on physical activity, mental health, and social support. To also use this platform as an avenue to provide updates on rapidly changing COVID-19 information specific to neurological conditions, and to gain insight on the current needs and concerns of participants. <h3>Design</h3> Program evaluation post and follow up (1-year). <h3>Setting</h3> ‘NeuroSask Active and Connected' started as a COVID-19 virtual knowledge-mobilization program designed to share information on evidence-based health-promoting behaviours, and to support social-connectedness amongst individuals with neurological conditions. <h3>Participants</h3> The project targeted individuals with moderate disability from a neurological condition and was inclusive of wheelchair users. <h3>Interventions</h3> The primary activity was a 10-week virtual program that ran twice weekly and included an ‘Active' and a ‘Connected' portion. Program evaluation involved surveying participants at the end of the 10-weeks. Based on high uptake and positive participant feedback, the program was extended, and a one-year evaluation of the program was completed. <h3>Main Outcome Measures</h3> Program evaluation. <h3>Results</h3> 800 participants registered for the initial 10-week program; approximately 1200 participants are enrolled in the extended program. 325 participants completed the one-year evaluation. 70% of participants have multiple sclerosis, with the remaining participants affected by other neurological conditions including Parkinson's disease, spinal cord injury, stroke, traumatic brain injury, cerebral palsy, and spinal cerebellar ataxia. Level of enjoyment was rated at 97%, and 100% agreed it was important for the program to continue running. Only 10% reported preferring in-person programs even outside of the pandemic (74% preferred virtual and 16% no preference). Participant-reported benefits included improved: physical wellbeing (96%); mental wellbeing (87%); sense of support (80%); awareness of existing resources (73%) and symptom management (55%). <h3>Conclusions</h3> NeuroSask provided support at a time of uncertainty and while the usual community physical activity/rehab, and social support programs were unavailable. Based on the reach, relevance, relationships, and results, this project had a substantial impact on participants. <h3>Author(s) Disclosures</h3> No conflicts of interest.