Abstract
Therapeutic tourism is a recent phenomenon in public health and has had repercussions among people with disabilities. Virtual social networks have enabled people to organize themselves to discover ways and means of seeking unconventional treatments in China. In this context, foreign biotech companies have offered experimental cell treatment therapies. In this work, netnography (conducting ethnographic research online) was conducted on the blogs of 58 people who organized campaigns to carry out treatment in China. In the analysis it was found that the main motivation for mobilization of resources and people in order to submit a disabled child to a treatment with stem cells without scientific proof is the rhetoric of hope promoted by stem cell laboratories. The conclusion drawn is that due to the ethical, legal and health implications, debate on the subject should be broadened in order to protect vulnerable individuals against inadvertent exposure to health risks due to treatments without proven control or rigor.
Highlights
Resumo O turismo terapêutico é um fenômeno sanitário recente e tem repercutido entre as pessoas com deficiência
Cada avanço na compreensão de mecanismos de diferenciação celular ou na engenharia tecidual recebe ampla cobertura midiática[4], desencadeando uma série de novos fenômenos de interesse sanitário, entre os quais o turismo terapêutico
As fontes de informação foram constituídas pelos conteúdos de blogs de ativismo social brasileiros: (a) um blog agregador de informações[32] que coordenava e apoiava o turismo terapêutico; Ciência & Saúde Coletiva, 21(10):3049-3059, 2016 e, (b) 58 blogs mantidos por famílias brasileiras, onde se veiculavam campanhas de arrecadação de fundos para viagem à China em busca de terapia celular
Summary
Resumo O turismo terapêutico é um fenômeno sanitário recente e tem repercutido entre as pessoas com deficiência. As fontes de informação foram constituídas pelos conteúdos de blogs de ativismo social brasileiros: (a) um blog agregador de informações[32] que coordenava e apoiava o turismo terapêutico; Ciência & Saúde Coletiva, 21(10):3049-3059, 2016 e, (b) 58 blogs mantidos por famílias brasileiras, onde se veiculavam campanhas de arrecadação de fundos para viagem à China em busca de terapia celular.
Sign-in/Register to view highlights & summary Sign-in/Register to access full text options 
Talk to us
Join us for a 30 min session where you can share your feedback and ask us any queries you have
Schedule a callDisclaimer: All third-party content on this website/platform is and will remain the property of their respective owners and is provided on "as is" basis without any warranties, express or implied. Use of third-party content does not indicate any affiliation, sponsorship with or endorsement by them. Any references to third-party content is to identify the corresponding services and shall be considered fair use under The CopyrightLaw.
