National disability insurance scheme: is it creating an ordinary life for adults with intellectual disability?

Abstract

A key goal of the NDIS, the federally funding individualised funding scheme for people with a disability in Australia, is to facilitate an ordinary life for them in their communities. This study examined family perceptions of the contribution NDIS made to create an ordinary life for their adult member with intellectual disability. Semi-structured interviews were conducted with 20 families. The families found this to be a complex process in that while the move to the new funding system supported some elements of a life more aligned to that of similar aged peers, there were also a number of missed opportunities. The opportunities that were available to the adult with intellectual disability were affected by stakeholders’ differing views of disability. NDIS presents an opportunity to continue to build towards enabling people with a disability to make their own choices and, with support when needed, build a life similar to their peers. Points of interest The National Disability Insurance Scheme (NDIS) is the new federal individualised funding scheme for people with a disability in Australia. The National Disability Insurance Scheme gives people with a disability their own funding. This helps them to be able to make their own choices about what they want to do and what support they need. The National Disability Insurance Scheme hopes to support an ordinary life for people with a disability in their communities. This study investigated how it is working for adults with intellectual disability. It showed that it is a complicated process. Some aspects of the National Disability Insurance Scheme are working well but there are missed opportunities. There is a need to keep talking about how people think about disability so we can understand the impact different views have on the National Disability Insurance Scheme planning and outcomes for adults with intellectual disability.