Abstract
AimsThe global epidemic of diabetes mellitus continues to expand, including its large impact on national health care. Measuring diabetes outcomes and their causes of variation highlights areas for improvement in care and efficiency gains; large registries carry this potential. By means of a systematic review, we aimed to give an overview of national registries worldwide by quantifying their data and assessing their influence on diabetes care.MethodsThe literature on MEDLINE up to March 31, 2020, was searched, using keywords diabetes mellitus, national, registry, registration, and/or database. National disease-specific registries from corresponding articles were included. Database characteristics and clinical variables were obtained. All registries were compared to the ICHOM standard set of outcomes.ResultsWe identified 12 national clinical diabetes registries, comprising a total of 7,181,356 diabetic patients worldwide. Nearly all registries recorded weight, HbA1c, lipid profile, and insulin treatment; the recording of other variables varied to a great extent. Overall, registries corresponded fairly well with the ICHOM set. Most registries proved to monitor and improve the quality of diabetes care using guidelines as a benchmark. The effects on national healthcare policy were more variable and often less clear.ConclusionsNational diabetes registries confer clear insights into diagnostics, complications, and treatment. The extent to which registries influenced national healthcare policy was less clear. A globally implemented standard outcome set has the potential to improve concordance between national registries, enhance the comparison and exchange of diabetes outcomes, and allocate resources and interventions where most needed.
Highlights
Diabetes mellitus presents a significant burden in Europe; the International Diabetes Federation (IDF) Diabetes Atlas 2017 estimates that it affects 58 million people and costs a staggering 145 billion euros annually [1]
12 national clinical diabetes databases were identified originating from Sweden (National Diabetes Register; NDR), Finland (Diabetes in Finland; Finland Denmark Norway (FinDM)), Denmark (Danish Adult Diabetes Registry; DADR), Norway (Norwegian Diabetes Register for Adults; NDR-A), The
All databases together accounted for a total of 7,181,356 diabetic patients
Summary
Diabetes mellitus presents a significant burden in Europe; the IDF Diabetes Atlas 2017 estimates that it affects 58 million people and costs a staggering 145 billion euros annually [1]. Its prevalence is expected to rise even further in the future as a result of rising obesity and increased unhealthy lifestyles, as well as an aging population [2]. There is an urgent need to identify ways to improve outcomes for those who have diabetes. Measuring and comparing diabetes outcomes—and identifying the causes of variation—help to highlight areas where better outcomes and efficiency gains can be achieved. Registries have the potential to collect large datasets that can inform decision-making [3]. They can act Managed by Massimo Porta
Sign-in/Register to view highlights & summary Sign-in/Register to access full text options 
Talk to us
Join us for a 30 min session where you can share your feedback and ask us any queries you have
Schedule a callDisclaimer: All third-party content on this website/platform is and will remain the property of their respective owners and is provided on "as is" basis without any warranties, express or implied. Use of third-party content does not indicate any affiliation, sponsorship with or endorsement by them. Any references to third-party content is to identify the corresponding services and shall be considered fair use under The CopyrightLaw.
