Mutual help without borders? Plurality and heterogeneity of online mutual help practices for people with long-term chronic conditions

Abstract

Online mutual help experiences may represent an opportunity for people with long-term chronic (LTC) conditions and their caregivers. However, there are very few accounts of or research on online practices of mutual support about such issues. On the other hand, the growth of online experiences of mutual aid has been extensive in recent decades. These experiences have been conventionally classified under the notion of ‘online support groups’. However, the notion of group seems to be reductive for the variety of forms, meanings and implications of such experiences. On the basis of these assumptions, our paper aims at: a) describing the main differences between traditional forms of mutual help and online mutual help; b) identifying the emerging forms of online mutual help experience, emphasizing their distinctive features; c) tracing the potential connections between different experiences and people, practitioners and institutions. We identify three main types of online mutual help experience: groups, communities and extemporary practices. We then analyze the value they can have for LTC people, caregivers, practitioners and institutions, emphasizing their heterogeneity. Finally we discuss the overall evolution of the mutual help phenomenon, considering its transition to an online dimension.