Abstract

Developmental problems in extremely preterm (EP) infants and the associated longitudinal burden for their families are major health issues worldwide. Approaches to social-emotional support such as family-integrating Creative Music Therapy (CMT) are warranted. We aimed: (1) to explore parental perspectives on the use of CMT with EP infants in the neonatal hospitalization period and (2) to examine the possible longitudinal influence of CMT. A qualitative design was used to examine the perspective of six families from various backgrounds. Semi-structured interviews were carried out when the infants reached school age. We used an inductive–deductive thematic analysis to identify three main themes, each with three sub-themes: (1) the positive impact of CMT on the infants, the parents, and bonding; (2) the attitude toward CMT, from being open-minded to recommending it as complementary therapy; and (3) the experience of overall healthy infant development despite unique developmental delay issues. The findings elucidate the positive and formative impact of CMT on both infants and parents in the stressful NICU setting and beyond. CMT may empower positive transformation in the parents through individualized early nurturing musical interactions, capacity building, and positive reinforcement. Further research may help to identify and implement potentially modifiable factors for improving health care in this vulnerable group through early family-integrating, resource-based approaches such as CMT.

Highlights

  • We performed qualitative interviews with parents who participated in a controlled prospective, longitudinal, clinical feasibility trial with infants receiving Creative Music Therapy (CMT) during their hospitalization in the Department of Neonatology of the University Hospital Zurich, Switzerland, around seven years ago

  • In line with Ryan & Bernard [38], we aimed to identify overall themes that represent recurrent unifying patterns of meaning in the data set while characterizing specific parental experiences using thematic analysis [39]

  • The parents described how exhausting and emotionally intense this time was while underlining the positive, formative impact of CMT on their infants, themselves, and their bonding in the stressful neonatal intensive care unit (NICU) setting and beyond

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Summary

Introduction

Developmental problems in preterm infants and the associated longitudinal burden for their families are major health issues worldwide [1]. Extremely preterm (EP) infants (born at less than 28 weeks of gestational age) who are very immature suffer from short and long-term impairments. Technological advances in medicine have improved the survival and outcomes of EP infants in recent decades, a reasonable risk for death (30–50% mortality) and disability (20–50%) remains [2,3,4]. Cognitive [5], behavioral, mental health [6], and learning disabilities [7] are common long-term problems in EP infants while the prevalence of severe disabilities, such as cerebral palsy, is decreasing [8]

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