Abstract

You have accessJournal of UrologySexual Function/Dysfunction: Penis/Testis/Urethra: Benign Disease & Malignant Disease II1 Apr 2016MP81-12 LONG-TERM SEXUAL HEALTH OUTCOMES IN MEN WITH CLASSIC BLADDER EXSTROPHY Ross Everett, Timothy Baumgartner, Kathy Lue, Ezekiel Young, Sunil Reddy, Uzoma Anele, Nilay Gandhi, Cameron Alexander, Heather Di Carlo, and John Gearhart Ross EverettRoss Everett More articles by this author , Timothy BaumgartnerTimothy Baumgartner More articles by this author , Kathy LueKathy Lue More articles by this author , Ezekiel YoungEzekiel Young More articles by this author , Sunil ReddySunil Reddy More articles by this author , Uzoma AneleUzoma Anele More articles by this author , Nilay GandhiNilay Gandhi More articles by this author , Cameron AlexanderCameron Alexander More articles by this author , Heather Di CarloHeather Di Carlo More articles by this author , and John GearhartJohn Gearhart More articles by this author View All Author Informationhttps://doi.org/10.1016/j.juro.2016.02.2065AboutPDF ToolsAdd to favoritesDownload CitationsTrack CitationsPermissionsReprints ShareFacebookTwitterLinked InEmail INTRODUCTION AND OBJECTIVES Long-term sexual outcomes in men born with classic bladder exstrophy (CBE) is an area of growing interest. With the transition from adolescence to adulthood, relationships and sexual performance have increasing importance. Currently, there is a paucity of data regarding the relationship status and sexual well-being of CBE patients in adulthood. The authors′ aim is to further quantify these quality of life components to allow for enhanced psychosocial support and medical care in adulthood. METHODS A prospectively-maintained institutional database comprised of 407 patients with CBE was utilized. Male patients 18 years or older were included. The Sexual Health Inventory for Men (SHIM) and the Penile Perception Score (PPS) questionnaire were utilized as well as study specific questions on health, relationship, and fertility status. Patients were contacted via telephone and were given the option to complete the survey via telephone, internet, or mailed paper. RESULTS A total of 215 men were identified, of which 72 (33.5%) completed the questionnaire. The mean age of the participants was 32.3 years, and 64% were in a relationship. 83% of the respondents had been sexually active in their lifetime, with 94% reporting a moderate to very high sexual desire. 71% had high to very high confidence in their ability to obtain and maintain an erection, and 73% were confident they would have an erection sufficient for penetration a majority of time. In light of their strong libido and erectile function, only 57 % were moderately to very satisfied with their sex life. The average SHIM score was 19.5. The PPS revealed all aspects of assessment scored an average between the dissatisfied and satisfied range on the four point Likert scale, except for penile length which was between very dissatisfied and dissatisfied with a score of 0.82. Fertility was identified as somewhat to very important to 72% of the respondents. Despite this reported importance, only 26% had attempted to obtain pregnancy with their partner. This may be related to the concern of 47% of the men that they may be infertile. 15% were successful in achieving pregnancy with their partner, while 28% report a confirmed fertility problem. 25% of the responders report having a semen analysis or post-ejaculatory urinalysis. Of the samples collected, only 2 individuals reported azoospermia. CONCLUSIONS CBE patients have many of the same sexual and relationship successes and concerns as the general population. This is invaluable data to provide to both the parents of boys with CBE, as it is to the patients themselves as they transition to adulthood. © 2016FiguresReferencesRelatedDetails Volume 195Issue 4SApril 2016Page: e1057-e1058 Advertisement Copyright & Permissions© 2016MetricsAuthor Information Ross Everett More articles by this author Timothy Baumgartner More articles by this author Kathy Lue More articles by this author Ezekiel Young More articles by this author Sunil Reddy More articles by this author Uzoma Anele More articles by this author Nilay Gandhi More articles by this author Cameron Alexander More articles by this author Heather Di Carlo More articles by this author John Gearhart More articles by this author Expand All Advertisement Advertisement PDF downloadLoading ...

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