MP62-13 THE PATIENT'S VOICE AT SCALE: UNDERSTANDING WHY PATIENTS ARE NOT SEXUALLY ACTIVE POST RADICAL PROSTATECTOMY THROUGH QUALITATIVE CODING OF RESPONSES ON A PATIENT REPORTED OUTCOME INSTRUMENT

Abstract

You have accessJournal of UrologyCME1 Apr 2023MP62-13 THE PATIENT'S VOICE AT SCALE: UNDERSTANDING WHY PATIENTS ARE NOT SEXUALLY ACTIVE POST RADICAL PROSTATECTOMY THROUGH QUALITATIVE CODING OF RESPONSES ON A PATIENT REPORTED OUTCOME INSTRUMENT Mahmoud Hijazi, David Gandham, Alice Semerjian, Thomas Maatman, Mohammad Jafri, Kenneth Kernen, James Peabody, Arvin George, Kevin Ginsburg, and Andrew Krumm Mahmoud HijaziMahmoud Hijazi More articles by this author , David GandhamDavid Gandham More articles by this author , Alice SemerjianAlice Semerjian More articles by this author , Thomas MaatmanThomas Maatman More articles by this author , Mohammad JafriMohammad Jafri More articles by this author , Kenneth KernenKenneth Kernen More articles by this author , James PeabodyJames Peabody More articles by this author , Arvin GeorgeArvin George More articles by this author , Kevin GinsburgKevin Ginsburg More articles by this author , and Andrew KrummAndrew Krumm More articles by this author View All Author Informationhttps://doi.org/10.1097/JU.0000000000003320.13AboutPDF ToolsAdd to favoritesDownload CitationsTrack CitationsPermissionsReprints ShareFacebookLinked InTwitterEmail Abstract INTRODUCTION AND OBJECTIVE: While Patient reported outcome measures (PROMs) can capture the patient perspective at scale, that perspective is often constrained by available survey items. To amplify the patient′s voice as communicated through a PROM, free text, or open response, items may provide a more nuanced rendering of what a patient is experiencing. The objective of this abstract is to understand in qualitative terms, why patients are not sexually active pre- and post-radical prostatectomy. METHODS: Survey responses from the Michigan Urological Surgery Improvement Collaborative prostate cancer disease registry were collected pre-treatment and at 3-, 6-, 12-, and 24-months post-surgery. Written responses to the question “Why are you not sexually active?” beyond were independently analyzed and iteratively refined into higher-level codes. For the same question, patients could select 8 other options (“Lack of a willing partner”, “Lack of interest,” “Lack of confidence,” “No ejaculate,” “No erection,” “Urine leak during intercourse”, “Pain/discomfort during intercourse”, and "Not applicable"); a free-response option was provided next to the “Other” option. Prevalence of codes was examined after two independent raters reached agreement on code definitions. RESULTS: Between 1/2018 and 12/2021, 24,568 PROMs were collected, and 20,268 patients responded to the sexual activity question. Approximately 7% of patients provided a text response: 1,448 unique patients submitted 1,875 written responses. Table 1 summarizes the identified codes and the percent of overall responses with each code. The three most common codes were complications (e.g., treatment-specific change in anatomy of function), partner (e.g., own health and interest), and structural issues (e.g., lack of time). Other factors that patients identified included comorbidities and explicit choices not to be sexually active. CONCLUSIONS: Written responses provide a glimpse into a more nuanced view of post-treatment sexual activity that can be used to not only develop a more robust understanding of patients but also develop survey items that better capture patient concerns and hesitancies. Source of Funding: Blue Cross Blue Shield of Michigan © 2023 by American Urological Association Education and Research, Inc.FiguresReferencesRelatedDetails Volume 209Issue Supplement 4April 2023Page: e866 Advertisement Copyright & Permissions© 2023 by American Urological Association Education and Research, Inc.MetricsAuthor Information Mahmoud Hijazi More articles by this author David Gandham More articles by this author Alice Semerjian More articles by this author Thomas Maatman More articles by this author Mohammad Jafri More articles by this author Kenneth Kernen More articles by this author James Peabody More articles by this author Arvin George More articles by this author Kevin Ginsburg More articles by this author Andrew Krumm More articles by this author Expand All Advertisement PDF downloadLoading ...