MP5-19 SOCIO-DEMOGRAPHIC AND CLINICAL DIFFERENCES IN UNMET INFORMATIONAL AND SUPPORTIVE CARE NEEDS OF PATIENTS UNDERGOING CYSTECTOMY AND URINARY DIVERSION

Abstract

You have accessJournal of UrologyUrinary Diversion: Bladder Reconstruction, Augmentation, Substitution, Diversion1 Apr 2014MP5-19 SOCIO-DEMOGRAPHIC AND CLINICAL DIFFERENCES IN UNMET INFORMATIONAL AND SUPPORTIVE CARE NEEDS OF PATIENTS UNDERGOING CYSTECTOMY AND URINARY DIVERSION Nihal Mohamed, Heather H. Goltz, David M. Latini, Phapichaya Chaoprang Herrera, Cheryl T. Lee, and Simon Hall Nihal MohamedNihal Mohamed More articles by this author , Heather H. GoltzHeather H. Goltz More articles by this author , David M. LatiniDavid M. Latini More articles by this author , Phapichaya Chaoprang HerreraPhapichaya Chaoprang Herrera More articles by this author , Cheryl T. LeeCheryl T. Lee More articles by this author , and Simon HallSimon Hall More articles by this author View All Author Informationhttps://doi.org/10.1016/j.juro.2014.02.402AboutPDF ToolsAdd to favoritesDownload CitationsTrack CitationsPermissionsReprints ShareFacebookTwitterLinked InEmail INTRODUCTION AND OBJECTIVES Assessing unmet needs of cancer patients can assist health care providers to tailor health care services to specific needs of patients and survivors. This study examined whether muscle invasive bladder cancer (MIBC) patients’ unmet informational and supportive care needs along the disease trajectory (at time of diagnosis, following surgery, and through extended survivorship) vary by the patients’ socio-demographic (age, gender) and clinical characteristics (time since diagnosis, comorbidity, and urinary diversion precodure). METHODS Participants (N = 30 survivors; 73.3% men;50% ileal condiut, 6.6% continent reservoir,43.33% orthotopic neobladder) were recruited from the Department of Urology and Oncological Science, at Mount Sinai and through advertisements on the Bladder Cancer Advocacy Network website between December, 2011 and September, 2012. Data was collected through individual interviews and electronic medical record review. Qualitative and quantitative analyses (Fisher’s Exact test) were employed to examine socio-demographic and clinical differences in reported unmet needs. RESULTS Qualitative and quantitative evaluation of patients’ interviews showed several areas of unmet informational and supportive needs that varied by the patient’s socio-demographics and clinical characteristics. Patients with neobladder were more likely to report difficulties with urinary incontinence, self-care, and sexual function compared to ileal conduit and continent reservoir patients (p < .05). Patients with ileal conduit had difficulties using stomal appliances and received assistance with self-care from home-visiting nurses whereas patients with a continent reservoir had difficulties using catheters. More women than men had difficulties with neobladder care and reported need of support with post-operative self-care (p < .05). Younger patients were more likely to report difficulties with post-operative self-care, worries about the future, and were also more likely to seek and receive professional support with sexual function than older patients (All ps < .05). CONCLUSIONS Unmet informational and supportive care needs of MIBC patients persist along the disease trajectory and vary by the patient’s age, gender, and urinary diversion. Educational and psychological interventions are needed to address patients’ unmet needs and should be specifically tailored to the type of unmet need and the patient’s demographic and clinical characteristics. © 2014FiguresReferencesRelatedDetails Volume 191Issue 4SApril 2014Page: e89 Advertisement Copyright & Permissions© 2014MetricsAuthor Information Nihal Mohamed More articles by this author Heather H. Goltz More articles by this author David M. Latini More articles by this author Phapichaya Chaoprang Herrera More articles by this author Cheryl T. Lee More articles by this author Simon Hall More articles by this author Expand All Advertisement Advertisement PDF downloadLoading ...