MP51-19 COMPLIANCE RATES AMONG PEDIATRIC CONGENITAL NEUROGENIC BLADDER PATIENTS PARTICIPATING IN A TRANSITIONAL CARE PROGRAM

Abstract

You have accessJournal of UrologyPediatric Urology IV (MP51)1 Sep 2021MP51-19 COMPLIANCE RATES AMONG PEDIATRIC CONGENITAL NEUROGENIC BLADDER PATIENTS PARTICIPATING IN A TRANSITIONAL CARE PROGRAM Aleksandar Blubaum, Jennifer Lewis, Dominic Frimberger, and Gennady Slobodov Aleksandar BlubaumAleksandar Blubaum More articles by this author , Jennifer LewisJennifer Lewis More articles by this author , Dominic FrimbergerDominic Frimberger More articles by this author , and Gennady SlobodovGennady Slobodov More articles by this author View All Author Informationhttps://doi.org/10.1097/JU.0000000000002077.19AboutPDF ToolsAdd to favoritesDownload CitationsTrack CitationsPermissionsReprints ShareFacebookLinked InTwitterEmail Abstract INTRODUCTION AND OBJECTIVE: Advancements in medical care have improved the prognosis of patients born with congenital urologic conditions. These patients have complex medical problems and often extensive surgical histories with altered anatomy, requiring specialized knowledge and close urologic follow-up. To assist these patients moving from pediatric to adult care, we developed a single specialty, urology-based transition clinic. Four readiness stages (T1-T4) that we have previously published about guide the transition. This study aims to update our experience with the transition clinic and report on its results. METHODS: We performed a retrospective chart review of all patients seen in the transition clinic since inception in 2014. We collected demographic and clinical data, including most recent T stage, appointment dates, transition time, as well as number of appointments and no show/cancellations. We analyzed this data to determine success rates and patient compliance with the transition process. RESULTS: 162 patients were seen in the transition clinic. 57/60 (95%) patients ready to transition to the adult clinic successfully completed this transition, with 3/60 (5%) failing to do so. The majority of inactive patients (last visit >365 days prior) were lost during pediatric stages with 34/60 (56.7%) at T1 and 13/60 (21.7%) at T2. Table 1 displays average transition time, average number of visits, and average number of no show/cancellations amongst active and inactive patients. 28 fully transitioned patients progressed per pathway, while 29 skipped from T2 to T4 due to losing their established pediatric provider. 7/29 (24.1%) expedited patients compared to 3/28 (10.7%) pathway patients were lost to follow-up (p=0.297). CONCLUSIONS: Patients with congenital urologic conditions who participated in a single specialty, urology-based transition clinic were successful completing the transition from pediatric to adult care. Active participation in a transition clinic was associated with increased clinic appointment attendance and fewer no show/cancellations. Non-compliance with pediatric provider visits predicted non-compliance with adult provider visits. Increased transition time and number of visits between stages were associated with increased transition completion rates. Source of Funding: None © 2021 by American Urological Association Education and Research, Inc.FiguresReferencesRelatedDetails Volume 206Issue Supplement 3September 2021Page: e903-e904 Advertisement Copyright & Permissions© 2021 by American Urological Association Education and Research, Inc.MetricsAuthor Information Aleksandar Blubaum More articles by this author Jennifer Lewis More articles by this author Dominic Frimberger More articles by this author Gennady Slobodov More articles by this author Expand All Advertisement Loading ...