Abstract

You have accessJournal of UrologyPediatric Urology IV (MP51)1 Sep 2021MP51-17 DECISIONAL REGRET IN ADULTS WITH SPINA BIFIDA REGARDING SURGERIES THEY HAD AS CHILDREN FOR NEUROGENIC BLADDER Joshua Roth, Konrad Szymanski, Benjamin Whittam, and Rosalia Misseri Joshua RothJoshua Roth More articles by this author , Konrad SzymanskiKonrad Szymanski More articles by this author , Benjamin WhittamBenjamin Whittam More articles by this author , and Rosalia MisseriRosalia Misseri More articles by this author View All Author Informationhttps://doi.org/10.1097/JU.0000000000002077.17AboutPDF ToolsAdd to favoritesDownload CitationsTrack CitationsPermissionsReprints ShareFacebookLinked InTwitterEmail Abstract INTRODUCTION AND OBJECTIVE: To assess decisional regret (DR) amongst patients with spina bifida (SB) regarding the decisions caregivers made to manage their neurogenic bladder (NB) as children. METHODS: Consecutive adult patients with SB were surveyed at clinic appointments (6/18-1/20). Higher DR Scale scores indicated greater DR (range 0-100). We analyzed whether presence of a ventriculoperitoneal shunt (VPS), mobility, gender, age, history of a bladder augment, history of a catheterizable channel, history of a bladder neck procedure, history of a bladder stone, history of a catheterizable channel revision, urinary incontinence, bothersome urinary incontinence, or recurrent urinary tract infection (≥3/year) had any impact on DR. Non-parametric statistical tests were used. RESULTS: Ninety-six patients with a median age of 26.3 (79.2% shunted, 56.3% female) had childhood surgery for NB. Median DR score was 0 (mean 11.9). Overall, 60.4% reported no regret and of those who reported regret, 89.5% reported only mild-moderate regret. In total, 4.2% of patients reported strong or very strong regret. Having any regret was associated with having a bladder neck procedure (OR 3.45, p=0.007) or bothersome urinary incontinence (OR 5.59, p=0.001). Regret was not associated with other factors. CONCLUSIONS: Patients with SB and resultant NB reported low levels of DR after surgery to manage their NB in childhood. When present, DR is usually mild. DR is more likely in those with a bladder neck procedure or bothersome urinary incontinence. Source of Funding: None © 2021 by American Urological Association Education and Research, Inc.FiguresReferencesRelatedDetails Volume 206Issue Supplement 3September 2021Page: e903-e903 Advertisement Copyright & Permissions© 2021 by American Urological Association Education and Research, Inc.MetricsAuthor Information Joshua Roth More articles by this author Konrad Szymanski More articles by this author Benjamin Whittam More articles by this author Rosalia Misseri More articles by this author Expand All Advertisement Loading ...

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