MP27-17 DOMAIN-SPECIFIC SYMPTOM BURDEN AND INFORMATION NEEDS IN PROSTATE CANCER SURVIVORS: A CASE FOR TAILORED LONG-TERM SURVIVORSHIP CARE

Abstract

You have accessJournal of UrologyGeneral & Epidemiological Trends & Socioeconomics: Quality of Life1 Apr 2015MP27-17 DOMAIN-SPECIFIC SYMPTOM BURDEN AND INFORMATION NEEDS IN PROSTATE CANCER SURVIVORS: A CASE FOR TAILORED LONG-TERM SURVIVORSHIP CARE Jennifer Bernat, Daniela Wittmann, Sarah Hawley, David Haggstrom, May Darwish-Yassine, and Ted Skolarus Jennifer BernatJennifer Bernat More articles by this author , Daniela WittmannDaniela Wittmann More articles by this author , Sarah HawleySarah Hawley More articles by this author , David HaggstromDavid Haggstrom More articles by this author , May Darwish-YassineMay Darwish-Yassine More articles by this author , and Ted SkolarusTed Skolarus More articles by this author View All Author Informationhttps://doi.org/10.1016/j.juro.2015.02.1179AboutPDF ToolsAdd to favoritesDownload CitationsTrack CitationsPermissionsReprints ShareFacebookTwitterLinked InEmail INTRODUCTION AND OBJECTIVES Many of the nearly 3 million US prostate cancer (PCa) survivors live with long-term symptoms across several quality of life (QOL) domains (urinary, sexual, bowel, vitality and emotional). Whether supportive information (info) should be tailored to a PCa survivor's long-term symptom burden is unknown. For these reasons, we explored relationships between survivors' domain-specific symptom burden and their info-needs up to 15 years post-diagnosis. METHODS We used data from the Michigan Prostate Cancer Survivor Study, which examined long-term survivor outcomes (N=2499, response rate = 38%). Participants reported levels of symptom burden across the EPIC-26 domains (urinary, sexual, bowel, vitality) and an emotional domain. We separated domain-specific burden into low/high groups and used McNemar tests to assess group differences in info-needs. Additionally, we conducted multivariable logistic regression to examine the association between symptom burden and three survivorship-related info-needs (recurrence, relational effects and long-term effects). RESULTS Respondents were a median of 9 years from diagnosis (<5 years 11.1%, 5-9 years 40.9%, 10-14 years 28.8%, and >15 years 19.3%) with a median age of 76. Of those with active treatment, the majority underwent prostatectomy alone (55.1%). High symptom burden was reported across all domains (urinary 14.4%, sexual 44.4%, bowel 8.4%, vitality 12.7% and emotional 7.6%). When stratifying by symptom burden level and domain, those with high symptom burden searched for info more frequently regardless of the specific domain (p <.001; Figure). After adjustment, high sexual burden was associated with a greater need for relational info (OR=2.05; 95% CI 1.54-2.72) and long-term effects info (OR=1.60; 95% CI 1.23-2.07). High bowel burden was associated with a greater need for long-term effects info (OR=2.28; 95% CI 1.43-3.63). CONCLUSIONS Symptom burden is a lasting problem among long-term PCa survivors. Our data suggest that survivors suffering from high symptom burden need more supportive info long term. Health care providers should remain vigilant and assess treatment-related symptom burden in long-term survivors to help them navigate towards resources to improve QOL. © 2015 by American Urological Association Education and Research, Inc.FiguresReferencesRelatedDetails Volume 193Issue 4SApril 2015Page: e309-e310 Advertisement Copyright & Permissions© 2015 by American Urological Association Education and Research, Inc.MetricsAuthor Information Jennifer Bernat More articles by this author Daniela Wittmann More articles by this author Sarah Hawley More articles by this author David Haggstrom More articles by this author May Darwish-Yassine More articles by this author Ted Skolarus More articles by this author Expand All Advertisement Advertisement PDF DownloadLoading ...