MP27-10 SIMPLIFYING THE IDENTIFICATION OF POST-ORGASMIC ILLNESS SYNDROME THROUGH THE DEVELOPMENT OF AN IN-OFFICE SURVEY TOOL

Abstract

You have accessJournal of UrologySexual Function/Dysfunction: Evaluation I (MP27)1 Sep 2021MP27-10 SIMPLIFYING THE IDENTIFICATION OF POST-ORGASMIC ILLNESS SYNDROME THROUGH THE DEVELOPMENT OF AN IN-OFFICE SURVEY TOOL Caleb Natale, Hoang Minh Tue Nguyen, Andrew Gabrielson, and Wayne Hellstrom Caleb NataleCaleb Natale More articles by this author , Hoang Minh Tue NguyenHoang Minh Tue Nguyen More articles by this author , Andrew GabrielsonAndrew Gabrielson More articles by this author , and Wayne HellstromWayne Hellstrom More articles by this author View All Author Informationhttps://doi.org/10.1097/JU.0000000000002024.10AboutPDF ToolsAdd to favoritesDownload CitationsTrack CitationsPermissionsReprints ShareFacebookLinked InTwitterEmail Abstract INTRODUCTION AND OBJECTIVE: Post-orgasmic illness syndrome (POIS) is a rare syndrome of unknown etiology in which patients experience physical and psychological sequelae after orgasm. Medical professionals are unlikely to be familiar with POIS, and thus a standard intake tool would be of benefit to aid in diagnosis and characterization of disease burden in patients who present with suspicion for the condition. Our aim is to develop a simple disease-specific questionnaire to help guide therapeutic intervention. METHODS: Survey domains and question items were generated after analysis of existing literature in addition to the results of an online survey of 302 participants and five in-depth patient interviews. Survey items were reviewed by a panel of four Urologists with experience treating patients with POIS. Survey items were then evaluated by 3 patients suffering from POIS during cognitive interviews. The expert panel re-evaluated the survey for appropriateness. Question items were then pre-tested on 6 patients suffering from POIS. RESULTS: Survey domains included each of the five diagnostic criteria of POIS as well as measures of disease burden. Disease burden items examined impacts to romantic, sexual, physical, and psychological aspects of patients’ lives. A total of 11 domains and 27 question items were initially proposed for the survey. Eight questions were modified, 2 were deleted and 5 questions were added. The expert panel concluded that 30 total question items were appropriate, accurate and interpretable. The panel decided that the question items adequately sampled these domains. Cognitive interviews resulted in the modification of 12 questions and survey instructions for clarity. CONCLUSIONS: This in-office survey instrument represents a quick and easy method of obtaining standard information concerning POIS symptoms and disease burden. Further investigation is necessary to validate this survey instrument. Source of Funding: Sexual Medicine Society of North America (SMSNA) © 2021 by American Urological Association Education and Research, Inc.FiguresReferencesRelatedDetails Volume 206Issue Supplement 3September 2021Page: e475-e475 Advertisement Copyright & Permissions© 2021 by American Urological Association Education and Research, Inc.MetricsAuthor Information Caleb Natale More articles by this author Hoang Minh Tue Nguyen More articles by this author Andrew Gabrielson More articles by this author Wayne Hellstrom More articles by this author Expand All Advertisement Loading ...