MP11-19 THE ART OF INTRODUCING CLEAN INTERMITTENT CATHETERIZATION: HOW FAMILIES RESPOND & ADAPT. A QUALITATIVE STUDY

Abstract

You have accessJournal of UrologyCME1 May 2022MP11-19 THE ART OF INTRODUCING CLEAN INTERMITTENT CATHETERIZATION: HOW FAMILIES RESPOND & ADAPT. A QUALITATIVE STUDY Stuart B. Bauer, Rachel Saunders, Saafia Masoom, Lillian Hayes, Diane Price, Paige Sable, Kennary Choung, and Ashley Shimmel Stuart B. BauerStuart B. Bauer More articles by this author , Rachel SaundersRachel Saunders More articles by this author , Saafia MasoomSaafia Masoom More articles by this author , Lillian HayesLillian Hayes More articles by this author , Diane PriceDiane Price More articles by this author , Paige SablePaige Sable More articles by this author , Kennary ChoungKennary Choung More articles by this author , and Ashley ShimmelAshley Shimmel More articles by this author View All Author Informationhttps://doi.org/10.1097/JU.0000000000002533.19AboutPDF ToolsAdd to favoritesDownload CitationsTrack CitationsPermissionsReprints ShareFacebookLinked InTwitterEmail Abstract INTRODUCTION AND OBJECTIVE: Irrespective of etiology, clean intermittent catheterization (CIC) is well-accepted for the management of bladder dysfunction in children; it helps to preserve kidney function & aids in achieving continence. Despite emphasis on CIC techniques, there is limited research on how families respond & adapt. The objective of this study was to explore families’ lived experiences when beginning CIC & to determine what optimized or hindered this process. METHODS: A phenomenological approach using semi-structured interviews was conducted with patients & families between Aug 2018 & Oct 2019. Interview questions were validated for acceptability with a pilot sample. Purposive sampling identified eligible patients with bladder dysfunction on CIC. Interviews were grouped by patient age: caregivers of children <12 years (Group 1), patients 12-18 years & their caregivers, interviewed separately (Group 2), & patients >18 years (Group 3). Reasons for CIC (neurogenic, anatomic, functional voiding disorders) were recorded for all. Interview questions focused on initiation of CIC, specifically which aspects of training or education acted as facilitators or barriers to implementation. Two coders reviewed transcripts independently with explicit coding and met to resolve differences between them. Emerging themes were identified to ascertain convergence, divergence, or variation in response. This allowed creation of a code book used for closed coding. Dedoose (a web-based qualitative coding program) was used to create code reports & allow for thematic analysis. RESULTS: 52 interviews were conducted: Group 1 (14 families, 14 interviews), Group 2 (10 families, 20 interviews), & Group 3 (16 families, 18 interviews including 2 parents interviewed separately). From these interviews, 6 themes emerged. Caregivers believed that learning & implementing CIC was easier when: (1) the child was young & a male, (2) information about CIC as a possibility was provided well in advance of formal teaching, (3) there was an adjustment period before starting, (4) all potential caregivers were present at teaching sessions, (5) the healthcare team offered guidance to balance employment obligations with CIC requirements, & (6) the healthcare team was sensitive, engaged, & accessible during its initiation. CONCLUSIONS: Healthcare providers should seriously consider engaging patients & caregivers in these strategies when introducing CIC as families would benefit from a well-structured educational plan & guidance prior to & following its implementation. Source of Funding: None © 2022 by American Urological Association Education and Research, Inc.FiguresReferencesRelatedDetails Volume 207Issue Supplement 5May 2022Page: e164 Advertisement Copyright & Permissions© 2022 by American Urological Association Education and Research, Inc.MetricsAuthor Information Stuart B. Bauer More articles by this author Rachel Saunders More articles by this author Saafia Masoom More articles by this author Lillian Hayes More articles by this author Diane Price More articles by this author Paige Sable More articles by this author Kennary Choung More articles by this author Ashley Shimmel More articles by this author Expand All Advertisement PDF DownloadLoading ...