MP04-18 THEMATIC ANALYSIS OF LIVED EXPERIENCE IN PATIENTS WITH ADULT ACQUIRED BURIED PENIS

Abstract

You have accessJournal of UrologyTrauma/Reconstruction/Diversion: External Genitalia Reconstruction and Urotrauma (including transgender surgery) I (MP04)1 Sep 2021MP04-18 THEMATIC ANALYSIS OF LIVED EXPERIENCE IN PATIENTS WITH ADULT ACQUIRED BURIED PENIS Gregory Amend, Jordan Holler, Natalie Rios, Michael Sadighian, Anthony Enriquez, Alex Vanni, Lee Zhao, Bradley Erickson, and Benjamin Breyer Gregory AmendGregory Amend More articles by this author , Jordan HollerJordan Holler More articles by this author , Natalie RiosNatalie Rios More articles by this author , Michael SadighianMichael Sadighian More articles by this author , Anthony EnriquezAnthony Enriquez More articles by this author , Alex VanniAlex Vanni More articles by this author , Lee ZhaoLee Zhao More articles by this author , Bradley EricksonBradley Erickson More articles by this author , and Benjamin BreyerBenjamin Breyer More articles by this author View All Author Informationhttps://doi.org/10.1097/JU.0000000000001971.18AboutPDF ToolsAdd to favoritesDownload CitationsTrack CitationsPermissionsReprints ShareFacebookLinked InTwitterEmail Abstract INTRODUCTION AND OBJECTIVE: There is a paucity of evidence documenting the lived experience of patients with adult acquired buried penis (AABP) and how this condition is affected by surgical treatment. The purpose of this study is to use patient interview data to describe the lived experience of patients with AABP to heighten clinicians’ awareness of the most prominent challenges this population faces and the efficacy of surgery in addressing these. METHODS: This mixed-methods study utilized validated survey instruments and semi-structured interviews to capture pre- and post-surgical outcomes for men with AABP. Semi-structured interviews were conducted at University of California, San Francisco with open-ended questions to elicit the impact of AABP on a patient’s quality of life in several domains including urinary function, sexual function, interpersonal relationships, and mental health. Interviews were conducted in English and were transcribed and independently coded by authors (JH, NR, MS). RESULTS: Fourteen (14) patients with AABP participated in the study, 10 of whom had undergone surgical treatment for their condition. Semi-structured interviewee responses were coded into 13 different themes (Table 1). The most common themes were problems with urinary and sexual function (14, 100%), which included urinary stream/spraying issues as well as inability to perform intercourse or achieve an erection; among patients who underwent surgery, the majority discussed improvement in urinary and sexual function (60% and 70% respectively). Most interviewees (79%) reported negative impacts of AABP on social life, primarily involving issues with using public restrooms and avoiding travel. Half of interviewees reported struggles with relationships and mental health, such as avoiding romantic relationships and fear of rejection with concomitant depression and/or anxiety, and issues with access to care. CONCLUSIONS: Patients living with AABP experience profound negative impacts on quality of life including urinary and sexual function, social life, and mental health. Additionally, many patients face issues with access to care. Providers should be aware that AABP patients have complex needs requiring interdisciplinary management, and that surgery may improve quality of life. Source of Funding: None © 2021 by American Urological Association Education and Research, Inc.FiguresReferencesRelatedDetails Volume 206Issue Supplement 3September 2021Page: e74-e74 Advertisement Copyright & Permissions© 2021 by American Urological Association Education and Research, Inc.MetricsAuthor Information Gregory Amend More articles by this author Jordan Holler More articles by this author Natalie Rios More articles by this author Michael Sadighian More articles by this author Anthony Enriquez More articles by this author Alex Vanni More articles by this author Lee Zhao More articles by this author Bradley Erickson More articles by this author Benjamin Breyer More articles by this author Expand All Advertisement Loading ...