Abstract
Plain English summaryAs knowledge translation trainee participants, we report on the discussions that took place during the 2017 Knowledge Translation Canada Summer Institute. The theme of the institute was patient-oriented research and patient engagement in research. Trying to move knowledge into health care practice can be difficult. Including patients and families as members of the research team can help to overcome some of these challenges by producing more relevant research designs and results. However, in the absence of guidelines and best practices, it can be difficult for trainees and researchers to effectively engage patients and families in designing and conducting research. We detail how trainees and early career researchers are currently engaging patients in their research, the strengths and challenges of engaging patients in research, and lessons learned. These discussions have helped us to identify important areas where future training and guidance is needed to support trainees as patient-oriented researchers.BackgroundMoving knowledge into health care practice can present a number of challenges for researchers. Including patients and families as members of the research team can help to overcome some of these challenges by producing more relevant research designs and results. However, many trainees and researchers experience difficulty in engaging patients and families in research effectively.Main bodyWe report on the discussions that took place at the 2017 Knowledge Translation (KT) Canada Summer Institute (KTCSI). The theme of the KTCSI was patient-oriented research and patient engagement in research. We provide an important viewpoint on how trainees and early career researchers are currently engaging patients in their research, the strengths and challenges of engaging patients in research, and lessons learned. As the target audience of the KTCSI, we provide our thoughts on what is needed to support trainees and researchers to more effectively engage patients and families in research.ConclusionWhile many of the participants at the KTCSI are conducting patient-oriented research, practical guidance, resources and tools are needed to ensure the effective engagement of patients in research. These discussions have helped us to identify how to move forward as patient-oriented researchers and where future work and support is needed to achieve effective engagement.
Highlights
Moving knowledge into health care practice can present a number of challenges for researchers
Findings from interactive participant sessions Who should be engaged? Participants identified a number of stakeholders that they felt were important to have on their research teams to support patient-oriented research
Important for Knowledge Translation (KT) trainees and early career researchers to be at the forefront of evidence creation and synthesis in this field
Summary
Moving knowledge into health care practice can present a number of challenges for researchers. As the target audience of the KTCSI, we provide our thoughts on what is needed to support trainees and researchers to more effectively engage patients and families in research. The KT Canada training committee identifies a priority topic area to explore during the KT Canada Summer Institute (KTCSI), an annual intensive workshop aimed at building KT skills and networking capacity for KT research trainees and early career investigators [4]. This research, conducted by multidisciplinary teams in partnership with relevant stakeholders, aims to apply the knowledge generated to improve healthcare systems and practices [5].”. The tenets of patient-oriented research are in direct alignment with the principles of integrated knowledge translation (iKT), in which researchers and stakeholders engage in a collaborative model of research to enhance the relevance of their findings [6] This research, conducted by multidisciplinary teams in partnership with relevant stakeholders, aims to apply the knowledge generated to improve healthcare systems and practices [5].” The tenets of patient-oriented research are in direct alignment with the principles of integrated knowledge translation (iKT), in which researchers and stakeholders engage in a collaborative model of research to enhance the relevance of their findings [6]
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