MON-262 Kidney Transplant Awareness in HD patients and factors influencing this; a single centre satellite unit experience

Abstract

Aim: To evaluate kidney transplantation awareness in satellite haemodialysis patients (SHP) and investigate influencing factors. Haemodialysis patients in a satellite dialysis unit were asked to complete a standardised questionnaire: exploring patient views and knowledge about kidney transplant. Patient demographics (age, gender, ethnicity, diabetic status, employment status, transplant status/scoring) were also recorded. 25 of 28 questionnaires were returned; responders declined anonymity and identified themselves. Demographics: mean age 58±14.9 years, males 64%, ethnicity ratio (NZ European: Maori: Pacifica) 14:9:2, diabetes 32%, employed 24%. 80% of respondents had treatment options discussed with them at the pre dialysis stage including kidney transplant. Despite this knowledge of the transplant list varied, 40% - no knowledge, 16% - were ineligible, 44% - some knowledge. 32% of respondents felt they were listed for transplant, 68% stated they were not listed. 92% were aware of live donor donation, 70% knew of a transplant recipient, 60% felt people lived longer with a transplant. Many patients thought they were either being worked up or listed when actually they were not. 14 patients calculated transplant survival score was >80%, 9 patients scored <80% (7 scored <70%). 2 patients not scored (80+ years). Those scoring >80%, 5 are currently listed, 4 are being workup up, 6 have not begun work up (including 3 deemed medically unfit). 3 patients listed had a prior failed transplant and were relisted within 12 months. Ethnicity of those scoring >80%: 6 NZ European, 7 Maori, 1 Pasifika. Ethnicity of those scoring <80%: 6 NZ European, 2 Maori, and 1 Pacifica. Many discrepancies in transplant knowledge were highlighted, including eligibility criteria and clarity regarding being ‘worked up’ and being ‘listed’. Patients were aware of the ability to receive a transplant, but lacked awareness of their own transplant eligibility situation/status. Patients listed were generally younger, had the ability to work and took an active role in their healthcare and demonstrated a good understanding of the transplant process. Reasons for this could include prior knowledge of the workup process or shorter dialysis vintage resulting in less dialysis related complications.