Abstract

Feasibility and acceptability research for HIV self-testing (HIVST) often emphasises the importance of good test conduct and correct test interpretation for knowing one’s HIV result while overlooking the ways in which different uncertainties and meanings emerge around testing. Using empirical examples from a quantitative study assessing an app-based strategy in Cape Town, South Africa, this research article explores the practice of HIVST and how people deal with uncertainties while using the app in question, named ‘HIVSmart!’. We use the concept of ‘living under’ to explore the practices of HIV testing for those who fit the definition of being ‘at risk’ of HIV (note that an individual’s HIV status must be unknown in order for them to fit this definition) and to understand how an app-based HIVST strategy fits within these practices. We show how the app and oral self-test—as well as knowledge around HIV risk behaviours, comparisons between different testing methods, and the guidance and presence of healthcare staff—alleviate as well as generate uncertainty and constitute HIV status as an ongoing process. The effective implementation of new strategies for HIVST requires consideration of multiple aspects of the testing process, including local understandings of HIV risk, access to healthcare staff, and the meaning of certain test methods within a particular context.

Highlights

  • The World Health Organisation (WHO) recommends HIV self-testing (HIVST) as a way of encouraging more people to find out their HIV status, which, in the case of a positive test, would lead them to seek confirmatory testing, counselling, and treatment

  • As we see in the communities in which the HIVSmart! study took place, HIV status is constituted through existing testing technologies, healthcare providers, health messaging, risk behaviours, and timings pre-scribed by what it means to ‘live under’ risk of HIV infection

  • As we have revealed in our research article, the new HIVSmart! strategy needs to work as part of and in relation to this existing assemblage, at certain moments providing reassurance or clarity around HIV test results and HIV status while in other moments contributing to further uncertainty

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Summary

Introduction

The World Health Organisation (WHO) recommends HIV self-testing (HIVST) as a way of encouraging more people to find out their HIV status, which, in the case of a positive test, would lead them to seek confirmatory testing, counselling, and treatment. Scientific research articles that focus on the feasibility and acceptability of HIVST alone often frame the issue of test conduct and interpretation through discussions of user knowledge, education around conduct, the provision of simple or easy instructions, and/or recommendations that rollouts of HIVST should include education on proper test use (Devillé and Tempelman 2019; Jamil et al 2017; Kurth et al 2016; Peck et al 2014). These suggestions aim, firstly, to deal with issues of uncertainty around how a person completes the test and interprets the results and, secondly, to help ensure that people who take the test do the ‘right’ thing after receiving a result by accessing the appropriate follow-up care

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