Abstract
Children dependent on long-term ventilation need the planning, provision and monitoring of complex services generally provided at home by professionals belonging to different care settings. The collaboration among professionals improves the efficiency and the continuity of care especially when treating children with complex care needs. In this paper, the Unified Modelling Language (UML) has been adopted to detect the variety of the patterns of collaboration as well as to represent and compare the different processes of care across the 30 EU/EEA countries of the MOCHA project.Conclusion: Half of the analysed countries have a multidisciplinary team with different degrees of team composition, influencing organisational features such as the development of the personalised plan as well as the provision of preventive and curative services. This approach provides indications on the efficiency in performing and organising the delivery of care in terms of family involvement, interactions among professionals and availability of ICT.What is known:• Children with CCNs require a coordination of efforts before and after discharge in a continuum of care delivery dependent on the level of integrated care solutions adopted at country level.What is new:•The adoption of a business process method contributes to perform a cross-country analysis highlighting the variability of team composition and its influence on the delivery of care.• This approach provides indications on the efficiency in performing and organising the delivery of care in terms of family involvement, interactions among professionals and availability of ICT.
Highlights
Children with complex care needs (CCNs) have to access multiple points of care, to treat their conditions and to monitor their psychophysical development through routine screening and examination tests
Children with CCNs require a coordination of efforts before and after discharge in a continuum of care delivery dependent on the level of integrated care solutions adopted at country level
This requires a coordination of efforts before and after discharge in a continuum of preventive, curative and rehabilitation care delivery dependent on the level of integrated care solutions adopted at country level
Summary
Children with complex care needs (CCNs) have to access multiple points of care, to treat their conditions and to monitor their psychophysical development through routine screening and examination tests. One of the main objectives of the MOCHA (Models of Child Health Appraised) project is to analyse the current approach in 30 EU/EEA countries to manage the care of CCNs, with particular regard to the integration of care among the primary, secondary and social level This challenging task is carried out through a multidisciplinary perspective using different methods that complement each other in order to gain the most accurate picture possible of the variety of pathways adopted at country level for the care of these children. The adoption of a standard language to describe the process (Unified Modelling Language, UML) in complex systems such as health care [9,10,11] supports a cohesive and pictorial description of the different ways of organising, coordinating and delivering child’s care, facilitating at the same time the comparison of the different patterns of care across countries
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